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My Son

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shirleymahoney Born In Tulsa Oklahoma and have a wonderful husband and 2 great children Find out more about shirleymahoney
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  • #1

    My Son

    Well my son is heading to Richmond to see Dr. Gilligan, his test came back as him having HCM the tech seems to think it is just a mild case but he still needs treatment and i wanted him to see my doctor and the fact he is the only one in the state of Virginia that is listed to treat the disease and i just love Dr. Gilligan it just seems he cares unlike my last cardiologist, well i just wanted to let everyone know about my son and to keep him in your prayers

    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9
    Tags: None
  • #2
    Re: My Son

    Shirley, he'll be in my thoughts and prayers. Do you mind telling us his first name?

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment

    • #3
      Re: My Son

      Reenie

      His first name is John, he is 28 years old but he is still my baby. Thank You for thinking of him

      Shirley
      Diagnosed 2003
      Myectomy 2-23-2004
      Husband: Ken
      Son: John diagnosed 2004
      Daughter: Janet (free of HCM)

      Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

      Comment

      • #4
        Re: My Son

        You got it, Shirley!

        Reenie
        Reenie

        ****************
        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.

        Comment

        • #5
          Re: My Son

          Shirley, I will also keep John in my thoughts and Prayers. He is lucky to have you as his mom. Pam
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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          • #6
            Re: My Son

            Let John know we are here for him too! I know this is difficult news for you and I am sorry he was diagnosed. He has a great resource in you as you have done so much to learn about HCM and can help him find the best care!

            Best wishes to all,
            Lisa
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)

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