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Dylan's Myectomy scheduled

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Dee Find out more about Dee
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  • #31
    Re: Dylan's Myectomy scheduled

    Have just read Dylan's webpage and so pleased to hear that everything has gone so well - God is awesome and it is so encouraging. Thank you for sharing your story with us - Dylan is an inspiration to us! It always amazes me how these special heart children teach us grown-ups so much.
    God Bless
    Alison & Anna Whybro
    New Zealand

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    • #32
      Re: Dylan's Myectomy scheduled

      AMAZING!!!!!!!!!!!
      What a wonderful recovery! I hope things keep moving in a positive direction!

      Do you know what the gradient is now?

      Best wishes,
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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      • #33
        Re: Dylan's Myectomy scheduled

        Thanx again everybody. We feel so blessed and LESS STRESSED at my house these days. On Thursday, when he left the hospital is gradient was 15-20. We go back on the 5th for a follow-up where I'm assuming they'll do another echo then.

        Dee
        Dee, Mom to Dylan
        (Almost 7 yrs old, HOCM, Endocarditis/Stroke 1/01, Myectomy/Valve Repair 4/04)

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        • #34
          Re: Dylan's Myectomy scheduled

          Dee,
          You and your family will be in my prayers...your son is adorable!
          \"It is not length of life, but depth of life.\"

          Ralph Waldo Emerson

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          • #35
            Re: Dylan's Myectomy scheduled

            I hope the little guy is feeling well! Please tell him lots of people care about him and we know he is gonna be feeling GREAT!

            Take care,
            Lisa
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)

            Comment


            • #36
              Re: Dylan's Myectomy scheduled

              Dylan should be our new poster child for myectomies. If a five year-old can go through all of that and still come out smiling after only 70 hours... then I hope that I have as much courage when it comes time to have my own myectomy. (Unfortunately, i'm a big fat wuss-boy so this is highly unlikely.) Take care everyone!
              "Some days you're the dog... some days you're the hydrant."

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