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Dylan's Myectomy scheduled

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Dee Find out more about Dee
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  • #16
    Re: Dylan's Myectomy scheduled

    You will all be in our thoughts and prayers. Get some rest, try to relax and know that we are all thinking of you!

    Peace to all!
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #17
      Re: Dylan's Myectomy scheduled

      Dee, You and Dylan are in our thoughts! Keep us all updated!

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      • #18
        Re: Dylan's Myectomy scheduled

        Dee,
        Dylan and your family are in my prayers.
        Joyce
        \"We are not human beings having a spiritual experience. We are spiritual beings having a human experience.\"
        Pierre Teilhard de Chardin

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        • #19
          Re: Dylan's Myectomy scheduled

          Dee,

          I'm so happy and relieved to hear that Dylan's surgery went so well today! Many thanks to Aunt Nynah for posting the update to your webpage

          Take care,

          Jim
          "Some days you're the dog... some days you're the hydrant."

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          • #20
            Re: Dylan's Myectomy scheduled

            This is such wonderful news. The personal web site is great! Phone calls are so exhausting at such a stressful time. We continue to pray for Dylan and his family. Linda

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            • #21
              Re: Dylan's Myectomy scheduled

              thanks for the update. I hope for the whole family for a smooth recovery.
              It must be so hard when its your own child. we are thinknig of you.

              sandy
              Fx

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              • #22
                Re: Dylan's Myectomy scheduled

                Dee,

                Sorry i haven't followed the thread here for a few days, but i checked your website tonight and see that Dylan went home on the 22nd. Woo hoo! What a great picture too! That kid is just as happy as can be... and just 70 hours post-op to boot! I'm so glad that everything has worked out so well for Dylan and your family

                For anyone who wants to check out the site... here's the link so you don't have to go back through the thread:

                http://www.caringbridge.org/wi/dylan/


                The photo album is great by the way. Only 93 hours post-surgery and he's outside playing with the other kids? LOL. I took longer to recover from my last cold than Dylan took to recover from open-heart surgery!

                Jim
                "Some days you're the dog... some days you're the hydrant."

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                • #23
                  Re: Dylan's Myectomy scheduled

                  Wow that was quick welcome home Dylan, I bet it feels good to sleep in your own bed Hugs and Prayers

                  Shirley
                  Diagnosed 2003
                  Myectomy 2-23-2004
                  Husband: Ken
                  Son: John diagnosed 2004
                  Daughter: Janet (free of HCM)

                  Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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                  • #24
                    Re: Dylan's Myectomy scheduled

                    So happy Dylan is home and doing well. Keep up the great recovery. Pam
                    Dx @ 47 with HOCM & HF:11/00
                    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                    Lead failure,replaced 12/06.
                    SF lead recall:07,extracted leads and new device 2012
                    [email protected] Tufts, Boston:10/5/03; age 50. ( gradien[email protected] 240 mmHg ++)
                    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                    Genetic mutation 4/09, mother(d), brother, son, gene+
                    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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                    • #25
                      Re: Dylan's Myectomy scheduled

                      We're home. Dylan left the hospital around noon on Thursday and is pretty much back to his old self. He's a little stiff and sore and it takes a little while to get going in the morning, but then there's no stopping him. We're just in complete awe about how well everything went. We tried not to have TOO high of expectations but he blew any we did have through the roof. The doctors and nurses at Children's Hospital in Milwaukee were outstanding. Dylan left on Thursday with a gradient of 15-20 and very trivial leakage of his mitral valve and on only 10 mg of Propranolol three times a day. On the 5th at his followup with his PC we hope to drop even that and he'll be medicine free for the first time in almost 5 years. We're ecstatic here in case it isn't too obvious.

                      Thank you Thank you Thank you for all the thoughts, prayers and emails and messages. They've meant the world to Chuck and I.

                      Dee
                      Dee, Mom to Dylan
                      (Almost 7 yrs old, HOCM, Endocarditis/Stroke 1/01, Myectomy/Valve Repair 4/04)

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                      • #26
                        Re: Dylan's Myectomy scheduled

                        Dee, I'm in tears. I'm so glad that Dylan is doing so well. Please keep us posted.

                        Reenie
                        Reenie

                        ****************
                        Husband has HCM.
                        3 kids - ages 23, 21, & 19. All presently clear of HCM.

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                        • #27
                          Re: Dylan's Myectomy scheduled

                          WOW!

                          Rhoda

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                          • #28
                            Re: Dylan's Myectomy scheduled

                            I have been following your posts and am thrilled Dylan is doing so well, my thoughts are with you and your family. Best wishes

                            Pam
                            It's not what you gather, but what you scatter that tells what kind of life you have lived.

                            Dx in Feb/99. Obstructed. No ICD, no surgeries, no family history. 2 sons ages 14 and 6.

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                            • #29
                              Re: Dylan's Myectomy scheduled

                              Best wishes for continued and uncomplicated recovery. Those pictures are marvelous. Yes, my tears are flowing too. Linda

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                              • #30
                                Re: Dylan's Myectomy scheduled

                                Congratulations! What an answer to prayer! We will keep you in our prayers. As a parent of a young Son with HCM, I can't imagine the stress (and relief now that it's over). May God keep blessing you and your family.

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