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My Son

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shirleymahoney Born In Tulsa Oklahoma and have a wonderful husband and 2 great children
shirleymahoney
Brave Heart
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    Ronnie
    Major Contributor

  • Ronnie
    replied
    Re: My Son

    Shirley-
    I know exactly how you feel, my Baby Boy 32 years old, was diagnosed with HCM, last week. After my constant nagging he went to see a Cardiologist- fortunately he doesn't have an obstruction (at this time), but he is experiencing bothersome arrythmias(spell?)-so they gave him an Event Monitor. He unfortunately lives in a different State, so I can't share my great Dr. with him. However, when he asked the Dr. about testing his children, the Dr said "HCM is only passed down by Women" is this Correct? do I not have to worry about my Grand Daughters?
    RONNIE

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  • Linda
    Super Moderator

  • Linda
    replied
    Re: My Son

    Shirley, You will be in my prayers. Cynthia is so right, a mother doesn't stop worrying. I'm sure a father doesn't either, we just all have different ways of going about it. You've had so much to deal with lately and are still recovering from major surgery. Please take care of yourself and let us know how things are going. You will deal with this whole thing in whatever way works for you, but you know we're all here for you. Linda

    Leave a comment:

  • cynthiaG
    Member of 1000 Post Club!

  • cynthiaG
    replied
    Re: My Son

    Shirley,

    First of all, I have a son who just turned 10yrs.old, even when he's 30! and he will always be my little boy! A mother never stops worrying and I worry about Matt getting HCM too. There have been so many extraordinary advances in medicine with this disease. Whatever feelings you have right now....let it all out. Then you can manage some composure and help him with the knowledge you have about HCM. He's 28 but most likely live a long life with it, like the majority of HCMers. Every day they are discovering new meds to help us live better with HCM...take care

    Cynthia

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  • Burton Borrok
    Dearly Departed

  • Burton Borrok
    replied
    Re: My Son

    Hi Shirley,
    Don’t listen to them – go fall apart and let Ken deal with picking up the pieces. Your son will get by somehow without your help, I’m sure. Hey, while we’re at it, did you ever consider bungee jumping, sky diving, or even a few snappy games of tennis?

    OK, feel any better now? Yeah, this disease stinks, and always has the potential to be shared with the family, but if a person takes normal care of themselves there is every probability they live a full lifespan – and enjoy it too. There are many diseases which stink much worse then this one does, with much more disastrous consequences.

    Your son is on top of the situation, and has a great mom to gain support and guidance from. If I know you at all, you will always be there for him and his family. Now go finish healing and take Ken out for dinner and dancing.
    Burt

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  • Reenie
    Super Moderator

  • Reenie
    replied
    Re: My Son

    Shirley, I'm sorry to hear about this. Remember, it's a good thing that he knows. At least he can adjust his lifestyle and get the proper care that he wouldn't get otherwise! We're here for you.

    Reenie

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  • sandylevitt
    Contributor

  • sandylevitt
    replied
    Re: My Son

    sorry to hear about this

    sandy

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  • mtlieb
    Brave Heart

  • mtlieb
    replied
    Re: My Son

    Hi Shirley,

    Sorry to hear that your son found out that he has this darn thing too. Like Mary always says, it's one club you definitely don't want to belong to. But it IS good news that he at least found out, right? He's also got a very experienced and knowledgeable mom to help him get this all straightened out.

    Take care,

    Jim

    Leave a comment:

  • Lisa Salberg
    HCMA CEO and Founder

  • Lisa Salberg
    replied
    Re: My Son

    Do not fall apart - remember YOU have lived a rather "normal" life and so will he. I know you are upset, frustrated and angry...that is how we all feel at the time of diagnosis. Allow yourself to go through these feelings - BUT please do NOT allow it to step in the way of your recovery...FOCUS on the FUTURE...and all you have infront of you!

    Be well,
    Lisa

    Leave a comment:

  • shirleymahoney
    Brave Heart

  • shirleymahoney
    started a topic My Son

    My Son

    Well i just got the news no mother wants to here, my son just got back from his Echo and the tech said it looked like he had the disease, we don't know how bad it is yet or if he is obstructed but i will let you know more as i do, my doctor ordered a holter monitor for him to wear because he has been complaining of pains and his heart racing and the dizziness he was getting, i sent him to my doc because he will not just sit on this, i'm talking as if he is a little boy he is 28 years old married with kids of his own and yes i told him his kids have to be tested, i think i'm still in shock here i feel numb, i always thought if one of my kids were to get this i would fall apart

    Shirley

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