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New symptom - neck pain???

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  • New symptom - neck pain???

    Dylan's been complaining off and on lately of a new symptom. He'll grab his throat and say his neck hurts. At the beginning of the month when this started I attributed it to the cold he had and maybe it was a sore throat. Lately though I'm seeing it at times when he's tired - for example, he started running up the sidewalk to school and stopped after about 10 steps too tired to keep going, turned around grabbing his throat and saying his neck hurts. I'm at a loss as to whether this is heart related or not - ?

    Has anyone experienced this or have any ideas what it could be?

    Dee
    Dee, Mom to Dylan
    (Almost 7 yrs old, HOCM, Endocarditis/Stroke 1/01, Myectomy/Valve Repair 4/04)

  • #2
    Re: New symptom - neck pain???

    Is he obstructed?

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment


    • #3
      Re: New symptom - neck pain???

      Yep - his gradient is running in the 70's at rest.
      Dee, Mom to Dylan
      (Almost 7 yrs old, HOCM, Endocarditis/Stroke 1/01, Myectomy/Valve Repair 4/04)

      Comment


      • #4
        Re: New symptom - neck pain???

        I can't tell you for sure that this is the answer, but when I experience angina, particularly when I exert myself, I feel it in my neck and throat. It is like a tightness/feeling of discomfort more than a pain like a sore throat. Usually when I stop the activity, the discomfort subsides, although sometimes, esp. after a big meal and when I lie down, it is there no matter what I do.
        Daughter of Father with HCM
        Diagnosed with HCM 1999.
        Full term pregnancy - Son born 11/01
        ICD implanted 2/03; generator replaced 2/2005 and 2/2012
        Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

        Comment


        • #5
          Re: New symptom - neck pain???

          Dee,

          Does the pain seem to be more on the outside of Dylan's neck rather than inside the throat itself? I've sure been getting a lot of that lately myself, almost like a stiff neck, but usually just on the left side. It seems to come and go along with the chest pain, and when it happens i can really feel my pulse throbbing in my neck as well. I would guess that it's HCM related, especially when you say that it coincides with exertion and other symptoms.

          Jim
          "Some days you're the dog... some days you're the hydrant."

          Comment


          • #6
            Re: New symptom - neck pain???

            It does seem like the outside of his neck. When I asked him if he has a sore throat he says no. Thanx for the input everyone. I'll give his PC a call now that it seems like there's a possibility it could be heart related.

            Thank you again!!
            Dee, Mom to Dylan
            (Almost 7 yrs old, HOCM, Endocarditis/Stroke 1/01, Myectomy/Valve Repair 4/04)

            Comment


            • #7
              Re: New symptom - neck pain???

              It is likely related to the obstruction. Please talk to the cardiologist.
              Lisa
              Knowledge is power ... Stay informed!
              YOU can make a difference - all you have to do is try!

              Dx age 12 current age 46 and counting!
              lost: 5 family members to HCM (SCD, Stroke, CHF)
              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
              Therapy - ICD (implanted 97, 01, 04 and 11, medication
              Currently not obstructed
              Complications - unnecessary pacemaker and stroke (unrelated to each other)

              Comment


              • #8
                Re: New symptom - neck pain???

                How is dylan?
                any ideas from the cardiologist?
                Any problems with the tonsil?
                try to see a specialist in this field
                Best wishes,
                Daniela
                Wishes for healh, peace and love!

                Daniela E-H, Mother to Matan-Ben (13 years old) who had his AICD implantation (29/03/04) and Myectomy (14/12/08) and Noga (4 years old) not affected
                Haifa - Israel.

                Comment


                • #9
                  Re: New symptom - neck pain???

                  Hi Daniele - thanx for asking about Dylan. We saw his PC on Monday and while he's not sure if it's angina or not, it's definitely a "symptom" because it happens when he's exerting himself. He believes it's time for a myectomy and we're meeting with the surgeon there this Monday. I've placed a call to Mayo on Tuesday regarding going up for a second opinion. Still waiting to hear back from them.
                  Dee, Mom to Dylan
                  (Almost 7 yrs old, HOCM, Endocarditis/Stroke 1/01, Myectomy/Valve Repair 4/04)

                  Comment


                  • #10
                    Re: New symptom - neck pain???

                    Dee, Best wishes, we'll be keeping you all in our prayers. I'm sure the second opinion will help you feel better about the whole thing. Please keep us posted. Linda

                    Comment


                    • #11
                      Re: New symptom - neck pain???

                      YOu are on the right path... if you need anything please call me.

                      Lisa
                      Knowledge is power ... Stay informed!
                      YOU can make a difference - all you have to do is try!

                      Dx age 12 current age 46 and counting!
                      lost: 5 family members to HCM (SCD, Stroke, CHF)
                      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                      Therapy - ICD (implanted 97, 01, 04 and 11, medication
                      Currently not obstructed
                      Complications - unnecessary pacemaker and stroke (unrelated to each other)

                      Comment


                      • #12
                        Re: New symptom - neck pain???

                        We will be waiting for good news!
                        Wishes for healh, peace and love!

                        Daniela E-H, Mother to Matan-Ben (13 years old) who had his AICD implantation (29/03/04) and Myectomy (14/12/08) and Noga (4 years old) not affected
                        Haifa - Israel.

                        Comment


                        • #13
                          Re: New symptom - neck pain???

                          Hi Dee,
                          My 7 year old daughter Anna gets neck pain like you described with Dylan.
                          It has happened four times recently. Every time it has happened at bedtime (end of the day when she is tired?). The neck pain comes when she has a very fast /irregular heart beat episode and also comes with chest pain. She often holds her chest as well as her neck, which is when I know she has overdone something or is overtired. Anna tells me that 'her neck is hurting'. I assume Anna's pain is like a cramp type pain. It is distressing to see your child cope with this and the first time it happened I did panic a bit and was very thankful for the reassuring words from this message board. It is interesting to know that other people (including children) are experiencing similar symptoms. There is no doubt in my mind that the neck pain is heart related.
                          Your wee man is such a cute little boy. I wish you all the best and look forward to keeping in touch and hearing about his progress.
                          Kind regards,
                          Alison (NZ)

                          Comment


                          • #14
                            Re: New symptom - neck pain???

                            I asked my specialist about the neck pain, and he told me that it is definitely a direct result of my obstruction and he's not the least bit surprised that i get it along with the chest pain. He said it's nothing to worry about, just another symptom to deal with

                            Of course now that Dylan has had his myectomy and has no gradient (woo hoo!) these are all things of the past for you Dee!

                            Jim
                            "Some days you're the dog... some days you're the hydrant."

                            Comment


                            • #15
                              Re: New symptom - neck pain???

                              Well guys i guess my stiff heart is causing my neck pain because i've had a myectomy and my obstruction is gone

                              Shirley
                              Diagnosed 2003
                              Myectomy 2-23-2004
                              Husband: Ken
                              Son: John diagnosed 2004
                              Daughter: Janet (free of HCM)

                              Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                              Comment

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