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Please could someone help me. My 7 year old daughter has recently been for a check-up and I need some more clarification on what the specialist has told us.
Her problems:
Hypertrophic cardiomyopathy with subaortic stenosis - resection of subaortic bands and septal myectomy on 17/10/2000 at age 3.
Persistent moderate subaortic obstruction, septal hypertrophy, left atrial dialation and mitral regurgitation. Pseudo delta wave on ECG (previous negative EP study but during stress test this wave was very exagerated)
While the ECG was running, Anna said that her heart was going fast and this showed 'sinus rhythm' - What does this mean exactly?
Her ECG also showed left ventricular hypertrophy with a strain pattern with inverted ST ad T wave segments in the lateral V leads and inferiorly - What does this mean?
A recent Holter showed ST depression during tachycardia - what does this mean?
Her septal thickness is 1.5cm, posterior wall thickness of .8. Peak velocity through the left ventricualr outflow track is 3.3m/sec at the end of systole. Mitral regurgitation is moderate with significant left atrial dialation. Peak velocity is 6m/sec. Gradient of around 40mmHg across the left ventricular outflow tract. Mitral valve is abnormal in it's support structure - papillary muscle seemed to be a little rotated.
Last night my daughter had one of her worst 'attacks' where her heart was racing fast and almost seemed to be jumping out of her chest. It was one of the worst episodes because it also caused her a lot of pain this time in the chest and she said that the pain was also going up the left side of neck (like I imagine an angina attack might be like?). It lasted about 2 or 3 minutes and then the pain gradually subsided. She couldn't bend forward without it hurting. It scared me, because this is the first time she has complained of having this much pain with a 'racing heart' episode. It happened while I was reading to her in bed, so she was resting.
I guess I am looking for reassurance - I feel a bit helpless and feel as if we should be doing something more. The cardiologist tells us to keep track of how many times she has a 'funny episode'.
How many more times does this have to happen before we need to follow up and what would happen next?
Our cardiologist is concerned about her developing atrial fibrillation - how do we deal with this progression?
Sorry for asking so many things - I guess the episode last night has got me going again and I am worried. Anna hasn't fainted or gone or blue or anything yet. We have noticed that her hands and feet are often very cold - more so than usual lately. Apart from all this, she is still an active little girl with loads of enthusiam for life - praise God!
Your opinions/thoughts/advice would be greatly appreciated.
Thanks everyone,
Alison (Mum of Anna)
Auckland, New Zealand
Her problems:
Hypertrophic cardiomyopathy with subaortic stenosis - resection of subaortic bands and septal myectomy on 17/10/2000 at age 3.
Persistent moderate subaortic obstruction, septal hypertrophy, left atrial dialation and mitral regurgitation. Pseudo delta wave on ECG (previous negative EP study but during stress test this wave was very exagerated)
While the ECG was running, Anna said that her heart was going fast and this showed 'sinus rhythm' - What does this mean exactly?
Her ECG also showed left ventricular hypertrophy with a strain pattern with inverted ST ad T wave segments in the lateral V leads and inferiorly - What does this mean?
A recent Holter showed ST depression during tachycardia - what does this mean?
Her septal thickness is 1.5cm, posterior wall thickness of .8. Peak velocity through the left ventricualr outflow track is 3.3m/sec at the end of systole. Mitral regurgitation is moderate with significant left atrial dialation. Peak velocity is 6m/sec. Gradient of around 40mmHg across the left ventricular outflow tract. Mitral valve is abnormal in it's support structure - papillary muscle seemed to be a little rotated.
Last night my daughter had one of her worst 'attacks' where her heart was racing fast and almost seemed to be jumping out of her chest. It was one of the worst episodes because it also caused her a lot of pain this time in the chest and she said that the pain was also going up the left side of neck (like I imagine an angina attack might be like?). It lasted about 2 or 3 minutes and then the pain gradually subsided. She couldn't bend forward without it hurting. It scared me, because this is the first time she has complained of having this much pain with a 'racing heart' episode. It happened while I was reading to her in bed, so she was resting.
I guess I am looking for reassurance - I feel a bit helpless and feel as if we should be doing something more. The cardiologist tells us to keep track of how many times she has a 'funny episode'.
How many more times does this have to happen before we need to follow up and what would happen next?
Our cardiologist is concerned about her developing atrial fibrillation - how do we deal with this progression?
Sorry for asking so many things - I guess the episode last night has got me going again and I am worried. Anna hasn't fainted or gone or blue or anything yet. We have noticed that her hands and feet are often very cold - more so than usual lately. Apart from all this, she is still an active little girl with loads of enthusiam for life - praise God!
Your opinions/thoughts/advice would be greatly appreciated.
Thanks everyone,
Alison (Mum of Anna)
Auckland, New Zealand
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