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heather Find out more about heather
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  • Hello!

    Hello to all! I have posted in forever! I have gone back to work this year and am adjusting to working and having a family. I have been home with my children the past 6 yrs. I am teaching 5th grade at a local arts academy! It's been tough, but I'm enjoying being in the working world again! I am doing great since my ICD implant nearly a year and a half ago! I can't believe it's been that long!

    Anyway, why I'm writing. I took my oldest son, Hunter, 6 1/2, to a ped. cardiologist a few weeks ago. His echo was totally normal with normal function, pumping, blood flow, etc! But, his EKG was abnormal with variations in his t-waves.......The dr. said some them were negative and they should all be positive........I've gotten pretty good at echo results, but not too familiar with the EKG/ECG results. What does all this mean? The dr. had him wear a holter home and I finally called on it the other day and they said it was defective, so he would have to do it again. The cardiologist has a ped. EP dr. coming in from Baylor in May and we have another appt. then for another opinion. He said he wanted another opinion. He also said he would not consider him as having HCM at this time!

    Anyone have any thoughts.......??

    Thanks,
    Heather - 31-HCM - ICD NOV. 02
    Heather, 43, non-obstructive HCM, dx'd at age 14, AICD implanted 11-02, PVAI ablation done for a-fib and a-flutter 5-2010. 2nd PVAI done for a-flutter and a-tach 3-2014. 3rd PVAI for a-flutter June 2015, dr forgot to reset ICD settings and I went into vt and almost died, July 2015, July 2015-started tx work up, October 2015, put on list in Dallas and tx'd on November 14, 2015.

  • #2
    Re: Hello!

    Inverted T waves are something that happen to a lot of people with HCM. What he meant by positive and negative is that the ECG is a graphic representation of the electical impulse of the heart beat. When the heart beats, it is becuase the heart is depolarizing and repolarizing (negative and positive electrical charges). During the T wave, the heart should be postively charged and in your son, some of time, it is negatively charged. The mechanical effect is that the heart is beating a bit out of step.

    It isn't uncommon and it isn't something to be concerned about it and of itself but you need to know why it is happening. It isn't something, as far as I know, a normal heart would do.

    I have heard that you can have HCM with little actual hypertrophy since it also a function of the muscle tissues organization which typically leads to thicker walls.

    If I were in your shoes, I would ask Lisa for the name of the best pediatric HCM specialist and see him (I don't say him or her as I know the odds of it being a her).

    good luck,

    S

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    • #3
      Re: Hello!

      heather,
      I also got hcm and my daughter has a abnormal ekg, I've had my share off losses too, so I think if you feel unsure about the results, ask questions and/or get a second opinion, Every year I take my duaghter to bet completely tested and I will do so for the rest of our lives, and after the tramas in my life I'll never quit pushing for answers.
      Just ask everything you worry about, making a list sometimes helps, so you don't forget anything when you see the doctor.
      GOOD LUCK!!!!
      JEN
      Jen

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