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If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
Can you tell me where to look for a specialist in my area. We have a number of cardiologists in this town, but not sure who would be best to see. I would be willing to go to a larger city also. I live in West Michigan. I am hoping to find a provider to take my daughter to, with her recent test results, which were ok, but I would feel much better having them reviewed with someone who is familiar with this disease.
Please call the HCMA office on Thursday. Lisa is in the office between 9 a.m. and 5 p.m. Eastern time. The number is 973-983-7429. She should be able to help you locate a specialist.
Kelly
Life is 10% what happens to you and 90% what you do with what happens to you.
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
I am so furious right now with my husbands doctor. He went for the appointment and the physician (general practitioner) said it isn't necessary for him to have anything other than an echo??? He told my husband he has "lots of patients with this condition, or family history", and it only requires an echo if that, being he has not had any problems thus far.
I just called the office to tell them, he needed the other two components, and hopefully they won't give us a hard time about scheduling them.
See..this is the quality of care in this area, which is ridiculous.
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