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CassandraAK Find out more about CassandraAK
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  • HCM specialists

    Can you tell me where to look for a specialist in my area. We have a number of cardiologists in this town, but not sure who would be best to see. I would be willing to go to a larger city also. I live in West Michigan. I am hoping to find a provider to take my daughter to, with her recent test results, which were ok, but I would feel much better having them reviewed with someone who is familiar with this disease.

    Cassandra

  • #2
    Re: HCM specialists

    Hi Cassandra,

    Please call the HCMA office on Thursday. Lisa is in the office between 9 a.m. and 5 p.m. Eastern time. The number is 973-983-7429. She should be able to help you locate a specialist.

    Kelly
    Life is 10% what happens to you and 90% what you do with what happens to you.

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    • #3
      Re: HCM specialists

      Kelly,

      Thanks so much. I tried calling earlier today but had no answer. I will try tomorrow.
      Cassandra

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      • #4
        Re: HCM specialists

        I am in the office all day today...call me!
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

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        • #5
          Re: HCM specialists

          Lisa,

          I am so furious right now with my husbands doctor. He went for the appointment and the physician (general practitioner) said it isn't necessary for him to have anything other than an echo??? He told my husband he has "lots of patients with this condition, or family history", and it only requires an echo if that, being he has not had any problems thus far.

          I just called the office to tell them, he needed the other two components, and hopefully they won't give us a hard time about scheduling them.

          See..this is the quality of care in this area, which is ridiculous.

          Cassandra

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