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baby hocm

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oriviz Find out more about oriviz
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  • Danielaeh
    replied
    Re: baby hocm

    Hi Liat!!

    Great to see you wrote!!!
    I wish you the best in Jerusalem!
    I hope we will meet soon!!!
    My son was very sick lately as you know
    Maybe this week end?
    I

    Leave a comment:


  • mflanagn
    replied
    Re: baby hocm

    Hi Liat -

    Welcome to the site. My kids were diagnosed with HCM at birth. Both are doing great. My daughter is 12 and my son is 9. They take propronolol daily and see their cardiologist every 6 months.

    Daniela has a son Matan. They are from your area of the country. She checks in this site too. Hopefully she can get in touch with you and help you understand the disease.

    Good luck with your doctor visits.

    Leave a comment:


  • SheliRenee
    replied
    Re: baby hocm

    Hi Liat -

    I am glad you found this site. It has been very informative and the people here are all wonderful. My son was diagnosed at 2 days of age. It was scary and very difficult to deal with at first but with the support of family, friends, and the friends on this site, it has been easier to deal with. Ask any question you need to...... You will get answers here. Welcome.

    SheliRenee

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  • Linda
    replied
    Re: baby hocm

    Liat, Welcome and best wishes for your little one. We'll be thinking of you all. Linda

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  • Lisa Salberg
    replied
    Re: baby hocm

    I received the fax you sent to the office... I am having a hard time getting through the english/hebrew. When I have figured it all out I will send you a PM.
    Be well,
    Lisa

    Leave a comment:


  • Reenie
    replied
    Re: baby hocm

    Hello. I wish you luck. We have another person here who is from Haifa and I hope that she can read your message and help you with information. Good luck with your baby's visit to Jerusalem.

    Reenie

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  • Donna
    replied
    Re: baby hocm

    Liat, I am glad you found us. I do wish you and your little one the best. I hope you have some grandparents to help with your 2 year old son. Let us know what you find out.

    Leave a comment:


  • oriviz
    started a topic baby hocm

    baby hocm

    Hi to all
    My name is Liat I am from Israel,my baby girl moran is hocm from birth
    now she is 6 month old and so beutifull
    no one in our family diagnosed as hocm
    moran is taiking beta blockers and dizothiazid
    that this is the regular tritment in israel to babys
    next week maby we will go to "hadasa" hospital in jerusalem to start a new tritment with high dose beta blockers
    It's going to be hard to us and to the baby becouse we have at home two years old son
    I hope everything will be OK
    please wish us good luck
    Liat
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