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  • #1

    baby hocm

    Hi to all
    My name is Liat I am from Israel,my baby girl moran is hocm from birth
    now she is 6 month old and so beutifull
    no one in our family diagnosed as hocm
    moran is taiking beta blockers and dizothiazid
    that this is the regular tritment in israel to babys
    next week maby we will go to "hadasa" hospital in jerusalem to start a new tritment with high dose beta blockers
    It's going to be hard to us and to the baby becouse we have at home two years old son
    I hope everything will be OK
    please wish us good luck
    Liat
    Mom of moran 6 month with hocm
    Tags: None
  • #2
    Re: baby hocm

    Liat, I am glad you found us. I do wish you and your little one the best. I hope you have some grandparents to help with your 2 year old son. Let us know what you find out.
    Donna B. HCM & ICD. 2 sons with HCM. Brother passed away from HCM at the age of 39. Mother has HCM.

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    • #3
      Re: baby hocm

      Hello. I wish you luck. We have another person here who is from Haifa and I hope that she can read your message and help you with information. Good luck with your baby's visit to Jerusalem.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

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      • #4
        Re: baby hocm

        I received the fax you sent to the office... I am having a hard time getting through the english/hebrew. When I have figured it all out I will send you a PM.
        Be well,
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

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        • #5
          Re: baby hocm

          Liat, Welcome and best wishes for your little one. We'll be thinking of you all. Linda

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          • #6
            Re: baby hocm

            Hi Liat -

            I am glad you found this site. It has been very informative and the people here are all wonderful. My son was diagnosed at 2 days of age. It was scary and very difficult to deal with at first but with the support of family, friends, and the friends on this site, it has been easier to deal with. Ask any question you need to...... You will get answers here. Welcome.

            SheliRenee
            Mom of Keanu
            4 years old (will be in March)
            Dx at 2 days old with Biventricular hypertrophy
            Dx at 6 weeks with HOCM
            Dx at 5 months with V-tach
            Dx at 3 with Noonan Syndrome

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            • #7
              Re: baby hocm

              Hi Liat -

              Welcome to the site. My kids were diagnosed with HCM at birth. Both are doing great. My daughter is 12 and my son is 9. They take propronolol daily and see their cardiologist every 6 months.

              Daniela has a son Matan. They are from your area of the country. She checks in this site too. Hopefully she can get in touch with you and help you understand the disease.

              Good luck with your doctor visits.
              Michelle - mom to Krista and Tyler both HCM
              Krista surgeries: 3/97 myectomy, 2/99 mitral valve replacement
              Tyler surgery: 1/98 myectomy

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              • #8
                Re: baby hocm

                Hi Liat!!

                Great to see you wrote!!!
                I wish you the best in Jerusalem!
                I hope we will meet soon!!!
                My son was very sick lately as you know
                Maybe this week end?
                I
                Wishes for healh, peace and love!

                Daniela E-H, Mother to Matan-Ben (13 years old) who had his AICD implantation (29/03/04) and Myectomy (14/12/08) and Noga (4 years old) not affected
                Haifa - Israel.

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