I cannot get my son in school can someone suggest something

[I LOVE DERRICK]

my son has not attended school and im really upset. i tried to get help from the bd.of ed. in nyc but they keep giving me the run around. his dr. said he needed to go to this special school because he dosent want him to climb stairs,carry text books or take gym ...ok so the 1st day of school i was at the bd.of ed working with the district health coordernator to get him into school .....well since then i havent had any luck with the pupil transportation , the school ,or the bd.of ed. so now im really upset because my son now hates school! he has always been a straight a student ,never had a problem with another student or a teacher he used to love school but now he says he cant wait till hes 16 so he can sign his self out! this is what his life is becoming becauseof this diesease and i am really upset! and to top it off none of the nyc public schools have that difibulator machine ....even the special schools that have heart patients! well i had to let that off my chest and now i think im going to have to be forced to home school him because i really have no choice now he wont pass to the 7th grade next year anyway because of the absences anyway ....i just think its a shame that he went from a straight a student who loved school ...to a kid who hates school now and has to be home schooled just because we have to try harder to get him to the next grade.

[Lee]

Re: I cannot get my son in school can someone suggest someth

I have heard of rights that some students with disabilities have to the development of IEP's, i.e. Individualized Educational Plans, developed for some students with disabilities.

The context in which I heard of these rights is children with cerebral palsy. Many of my clients and their parents have had to pursue legal remedies to have school districts develop individualized plans for their education.

While I am confident that some on this board will have more specific advice, I feel the need to share the limited information that I have.

I would suggest that you contact some of the advocates for children with disabilities in your state. In my state, the leading advocates on this issue are the staff of United Cerebral Palsy. You may also want to contact attorneys who work in this area, either through a local program funded through Legal Services, or a law school clinic.

Sometimes those who advertise themselves as practicing "education law" will be the most helpful.

I wish you much luck

Feel free to e mail me if I can answer any other questions.

I will be glad to ask my clients here in Michigan for their suggestions if this does not help.

Lee Tilson
[email protected]
Detroit, Michigan

[Sarah]

Re: I cannot get my son in school can someone suggest someth

Hi,

I'm a little concerned because it is very rare for a kid to go from being fine to being unable to carry his books around. Is your son really this incapacitated or is the doctor over-reacting? If you aren't sure, please get your son to an HCM specialist asap and see if he can't get back into normal school.

You can also investigate defibrillators and getting them placed in his future school. However, if your son is really at risk for sudden death, then he just needs an ICD (implanted defibrillator).

It is just plain wrong that this is so difficult. You really need to get in touch with the authorities and rattle their cages. Lisa may be able to give you an idea of what to say and to whom.

good luck,

s

[Lisa Salberg]

Re: I cannot get my son in school can someone suggest someth

Take Lee up on his offer, he is a great person who knows a great deal on these issues.
You should not have these problems with the school, this is simply a mess. We will assist you as best we can in getting him back to school!
I will try to call you later today.

Lisa

[Lee]

Re: I cannot get my son in school can someone suggest someth

Each state should have a protection and advocacy agency that represents children with disabilities.

You might want to use these links to locate those agencies in your state:


http://www.familyvillage.wisc.edu/education/panda.html

http://www.fape.org/

Here is a google search link for the search for "new york" and "protection and advocacy" :

http://www.google.com/search?sourcei...d+advocacy%22+


You can always try calling the state bar associations, local legal services agencies, local law school clinical law programs, or librarians to obtain further names of agencies or information.

One of my rules for solving problems follows:

_________________________________

I am not unique. Therefore, if I have a problem, someone else has likely faced, and solved, a similar problem in the past. If I can find that person, I do not have to reinvent the wheel. I can take advantage and benefit from all of her work.

So I ask myself: Who would have faced a similar problem in the past?

Find that person, and I have saved myself a lot of time, money and trouble.

Usually, if I am looking for some interesting general information, some government agency has it. Often congresspeople and city council members are able to help me.

If all else fails, ask a librarian, or a law librarian.

___________________________________________

Good luck and may the force be with you.

Lee

[Lisa Salberg]

Re: I cannot get my son in school can someone suggest someth

One thing you have to love about Lee...he always leaves you with a smile!
I love the joke links!!!
Lisa

[Lee]

another link you may find helpul:

http://groups.yahoo.com/group/IEP_guide/

and you may want to search for the subject of

"IEP" or

"Individual Educational Placement" or

"Individualized Educational Placement"

Good luck.

Lee

[SheliRenee]

Re: I cannot get my son in school can someone suggest someth

Hi there -

Just wanted to throw in another variation to search for....

"Individualized Education Program"

At least that is what the school where I taught called them.

Good luck.

SheliRenee

[Lee]

Re: I cannot get my son in school can someone suggest someth

oops

sorry