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thank you all for the replys


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  • thank you all for the replys

    i just wanted to say thank you all for your replys. i feel like things are hopefully gonna get better or at least i think we will find out what we are up against. i will be calling lisa tuesday, maybe she can get us on the right track, also i gotta tell you all that i m really not good at computers i think it was funny the way i found the messages lol well 1st ill research about hcm then i think ill take a computer for dummies class. but seriously i try to hold up in front of derrick and i tell him that everything is gonna be alright but i feel in my heart that we are facing the worst thing we have ever faced and to feel like we have no control is like we are helpless. i never felt like that in my life and i know he certainly never did either. and my family has always burried their head in the sand but this time we cannot do that i just hope we can find something to do to make things easier for derrick and i hope one day there is a cure for all of us and our families you know i guess i can say i always thought that things like this would never happen to us. its sounds selfish but im not like that really its just that i used to hear stuff like people getting sick or see some one with a sick child on the news and feel so sorry for them and think how do people get through things like that and now i think wow im in that boat now and how are we gonna get through this i feel so lost ....so anyway thank you all for your support and stories and hopefully we will one day find a cure for this and we will all get through it!

  • #2
    Re: thank you all for the replys

    I'm sure that you will feel a lot better after you talk to Lisa tomorrow. She's a wonderful person. Almost everyone here has felt like you do now at some point in their lives. You will get through this.


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #3
      Re: thank you all for the replys

      I will be in the office all day today...call when you can.
      Stay focused on the future...because you and Derrick have a long one ahead of you!

      best wishes,

      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)


      Today's Birthdays