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Michael Phillips

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lizpandabear Find out more about lizpandabear
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  • Michael Phillips

    H i this is Elizabeth Michael Phillips mother I need to find out some information about dilated cardiomyopathy what exactly is it. Does it mean
    Michael is getting worse or something I need to worry about ?
    I took Michael to the doctor this Monday and he the cardiologist said that Michael is holdng his own he has not gotten any more fluid in his sac but it has not gotten any less either so we go to the cardiologist 2-3 times a week.

    Thankyou for your time
    Elizabeth

  • #2
    Re: Michael Phillips

    DCM - in someone who had had HCM is also looked at as "end stage" or "burnt Out" HCM. The walls thin and the EF drops.

    Have they changed the diagnosis?

    Hope all is well,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #3
      Re: Michael Phillips

      Hi Lisa,
      No they did not change anything as of yet.I did call Michael's local cardiologist he told mne that sometime's when you are in heart failure you get backed up what ever that mean's but then he went on to say don't worry tell he him self talk's to the surgeon that is easier said then done he did say that he would talk to the surgeon beofre he came to the hospital so hopefully I will know more then I do now.How do I get more info on burnt hocm? Does that mean that Michael is getting closer to transplant? I will keep you up-dated .

      Thanks once gain
      Liz

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