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Michael Phillips

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lizpandabear Find out more about lizpandabear
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  • #1

    Michael Phillips

    Hi Lisa and everyone I am Liz mother too (Michael Phillips) I am writting because Michael has had more fliud build up behind his heart I tock him to the doctor today and he say's if this keep's on happening they might have to go into his chest and cut some of the sac away from his heart or take it out all together. What do you think about them doing surgery and cutting some of the sac or completely removing the while sac I don't know what to think I am even more upset then before but the doctor said the fliud is less today thankgoodness.

    Sorry for taking up so much time .

    Bye Liz
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  • #2
    Re: Michael Phillips

    At least you got some good news today... Let hope he continues to show improvement.
    Be well... your in my thought!
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #3
      Re: Michael Phillips

      Dear Liz,

      I'm sorry to hear about possible surgery. I know how scary that must be. I'm not familiar with that procedure. I would find out the name of the procedure and do some on-line research to see what others think about it or how often this is one. It sounds like something you would want to have done by someone who does it a lot. But if Michael would benefit from it, then it would be a good thing.

      Take care,

      S

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      • #4
        Re: Michael Phillips

        Liz, I'm glad the fluid is decreasing. Hopefully, the procedure won't be necessary. Any surgery is scary. This is not a new procedure, it's been done for years when needed, and with good results, but he's still your "little boy" and we just want him to get better without the procedure. He will be in our prayers. Keep us posted, best wishes, Linda

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