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r2Godsgirl Find out more about r2Godsgirl
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  • Hello Again

    Hi, I haven't been here for a while. Sorry, it has been a long haul!!!

    I did finally have a septal myectomy and the atria was also done also. Dr Schaff was my surgeon at the Mayo Clinic and Dr. Gersh my Cardiologist. They were great!!!!!

    I had the surgery on 4-9-03 and was home by 4-15-03.

    By 4-19-03 I was back in the hospital with Heart failure and again May 5 with heart failure. I had never had this before and the doctors weren't sure what was going on. Went back to the Mayo clinic and Dr. Gersh ruled out a more serious condition, constructive pericarditus, but did find "Moderate Mitral regurgitation" and "mild pulminary regirgitation"

    He doesn't think that was causing the heart failure. He said it was fatigue to the heart from surgury and from having this disease causes other complications as well. He changed my medication and I am finally feeling better and have not had heart failure again.

    I was reading the forum today and do I unerstand that you recommned having children tested every 5 years even after eighteen and a clear test? Why?

  • #2
    Re: Hello Again

    Originally posted by r2Godsgirl
    I was reading the forum today and do I unerstand that you recommned having children tested every 5 years even after eighteen and a clear test? Why?
    The reason it's recommended to have the children tested after clear at 18 is that there are some people who do have what might be considered "late onset" HCM. It's something you should certainly ask your doctor about.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #3
      Re: Hello Again

      My husband wasn't diagnosed until age 30. If there is history--you must continue to have echos done--at least, that is my thinking. My kids aren't that age yet, so don't know what the doctors will say when they reach 18--but I am informed enough and stubborn enough to make sure they continue to monitored. I have already lost my husband to this--I refuse to lose my children. You have to do what you feel is right--and what you know is right. Take care, Roxann

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