Hello ;
I'm glad to say that my 3 children (ages 6,9,11) had their yearly echo this week and everything is normal. I'm not one to come unglued, but ,I hate the anticipation every year. Both my pediatrician and Pediatric cardiologist are very proactive, which is terrific. The kids understand the situation and are great participants . They love watching each others hearts. My 6 year old always wants to know why his heart doesn't look like a valentine!!
I was not diagnosed until age 36, when I experienced several episodes of syncope.(a sporatic case..no one in my family has been diagnosd other than me) Now I have an ICD and more recently a replacement that included a dual chamber pacemaker. I am followed by Dr. Lever in addition to Drs. in Buffalo.
Lisa: My pediatric cardiologist was a fellow with Barry Maron (small world!)
Dr. Pieroni.
I was asked by another pediatric cardiologist if we had undergone any molecular testing. What benefit would molecular testing have? Where can this testing be done?
Thanks!

I'm glad to say that my 3 children (ages 6,9,11) had their yearly echo this week and everything is normal. I'm not one to come unglued, but ,I hate the anticipation every year. Both my pediatrician and Pediatric cardiologist are very proactive, which is terrific. The kids understand the situation and are great participants . They love watching each others hearts. My 6 year old always wants to know why his heart doesn't look like a valentine!!
I was not diagnosed until age 36, when I experienced several episodes of syncope.(a sporatic case..no one in my family has been diagnosd other than me) Now I have an ICD and more recently a replacement that included a dual chamber pacemaker. I am followed by Dr. Lever in addition to Drs. in Buffalo.
Lisa: My pediatric cardiologist was a fellow with Barry Maron (small world!)
Dr. Pieroni.
I was asked by another pediatric cardiologist if we had undergone any molecular testing. What benefit would molecular testing have? Where can this testing be done?
Thanks!
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