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MemoryOfAspyn Find out more about MemoryOfAspyn
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  • #1

    Hello again, it has been a while

    Hello everyone, I love the new site, it looks great. I havent posted since sometime last year. I just wanted to pop in and say hello, and tell everyone I think of you often, and pray that everyone is doing fine. Wayne and I are doing ok, we miss Aspyn so much, and think of her so often. Aspyn was the best thing that ever happened to us, and we treasured every second we had with her, and now we treasure all of our memory's. Thank you all for your thoughts and prayers. If anyone ever needs anything please let me know. I have learned so much about Mitochondrial disease, which is what caused Aspyn's HCM. I would love to talk with anyone that might have questions.

    Thoughts and prayers,
    Stacy Block
    Mommy of Aspyn Remar Block
    Unknown Mitochondrial Disease, Cardiomyopothy, and Lactic Acidosis
    11-14-01 to 7-15-02
    Please visit Aspyn at www.aspynblock.com or
    www.rememberinghannah.co.uk/aspyn.htm
    Tags: None
  • #2
    Re: Hello again, it has been a while

    Stacy, thanks for joining us again. It's been a very difficult time for you and your family and you are very generous to offer to share with others. I know Aspyn certainly enriched your lives in the very short time you were blessed with her. I'm glad you are able to focus on the special memories. I've thought of you often and am pleased to see your posting. Your willingness to talk with others is a wonderful tribute to Aspyn's memory. Thank you Linda

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    • #3
      Re: Hello again, it has been a while

      Linda.
      Thank you so much for your kind words! Yes we have been through alot, and if what I learned through all of it could help anyone I would be more than happy to help out. Aspyn touched our lives and so many others in such a great way..she was so special!
      Stacy Block
      Mommy of Aspyn Remar Block
      Unknown Mitochondrial Disease, Cardiomyopothy, and Lactic Acidosis
      11-14-01 to 7-15-02
      Please visit Aspyn at www.aspynblock.com or
      www.rememberinghannah.co.uk/aspyn.htm

      Comment

      • #4
        Re: Hello again, it has been a while

        Stacy, welcome back. I remember you from about a year ago. Thank you for coming back to try to help others who might be going through the same things as you.

        Reenie
        Reenie

        ****************
        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.

        Comment

        • #5
          Re: Hello again, it has been a while

          I too think of Aspyn often as well as you and your family. I hope you are well and I want you to know that Aspyn remains a part of the HCMA and our fight to find answers.
          Be well.
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment

          • #6
            Re: Hello again, it has been a while

            I remember reading your story about Aspyn...How you can go on...I don't know. My prayers are with you and your family.
            Tammy

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            • #7
              Re: Hello again, it has been a while

              Some days it is very hard and I question that same thing, I wonder how I have made it so far. I guess I really dont have a choice, and I just pray every night that one day I will be with Aspyn again. I still have dreams about Aspyn, and I wake up so happy, but it seems some days are so hard, and others are bit easier. I just know we have the most perfect angel watching over us and look forward to the day I can be with her aagin.
              Stacy Block
              Mommy of Aspyn Remar Block
              Unknown Mitochondrial Disease, Cardiomyopothy, and Lactic Acidosis
              11-14-01 to 7-15-02
              Please visit Aspyn at www.aspynblock.com or
              www.rememberinghannah.co.uk/aspyn.htm

              Comment

              • #8
                Re: Hello again, it has been a while

                Stacy,
                Your angel is with us all... I do believe that yes you will see her again but for now you need to be here with us. When our work here is done, be it today or in 70 yrs we will be with those we once loved here on earth.

                Be well,
                Lisa
                Knowledge is power ... Stay informed!
                YOU can make a difference - all you have to do is try!

                Dx age 12 current age 46 and counting!
                lost: 5 family members to HCM (SCD, Stroke, CHF)
                Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                Therapy - ICD (implanted 97, 01, 04 and 11, medication
                Currently not obstructed
                Complications - unnecessary pacemaker and stroke (unrelated to each other)

                Comment

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