If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Thanx again

Collapse

About the Author

Collapse

r2Godsgirl Find out more about r2Godsgirl
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Thanx again

    Again, I would like to thank you for this site and the information you post here!!!

    I wish I had taken your advise and seen the HCM specialists in October when you told me to!!!! (I should have had my head examined too)

    They mentioned there may be a need for upper and lower chambers. This is as you know a new procedure and they don't know the long term effects.

    What information do you have on this procedure?

  • #2
    hi

    I'm glad we've been of help.

    I'm afraid I don't know what procedure you mean by "upper and lower chambers" --are you talking about a dual pacemaker?

    Thanks,

    S

    Comment


    • #3
      I guess I thought you were a mind reader.

      I mean the myectomy surgery. They said they may need to do both the upper and lower chambers due to thickness in the lower chamber also.

      Comment


      • #4
        I am not so sure about your terms... Myectomy is the procedure to remove the "bulge" from the heart to allow the blood to leave the lower portion of the heart.. the lower part is the ventricle..the upper part is the Atria. I have never heard of an apical myectomy???
        I am thinking that your septum is rather large so that they may have to go deep into the ventricle rather then only cutting the top portion they may have to move into the mid cavity or the middle (lower) part of the ventricle???
        Just a thought. I would call and clear up the questions pre procedure so that you are clear and to the plan of action.

        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

        Comment


        • #5
          hm

          Dear Lori,

          Myectomies are done on the septal wall of the ventricle (the lower chamber). If they are going to do the atria, too, I think that is the new part.

          I haven't heard of anyone here having that done.... anyone....anyone??

          If it is anything like the regular myectomy, you should be fine. The most important part is clearing out the extra so your heart can function.

          take care,

          S

          Comment


          • #6
            I think you have it Sarah. There have only been 12 of these done.

            I apologize for my lack of knowledge on the "technical terms"

            They did mention that the thickness in the lower part may be causing symptoms as well.

            When they explained it to me they showed me the that the upper part of my heart was thick. This also causes thickness down below that area as a result. That is where the other thickness is.

            Comment


            • #7
              OK I am with you now... You are talking about an Apical myectomy... they remove extra tissue from the bottom of the ventricle...it is new however the traditional myectomy removing the tissue from the upper part of the ventricle is 30+ years old.
              The reg. myectomy is tried and true..the apical is rather unknown at this point as to if how it may help the heart.
              Lisa
              Knowledge is power ... Stay informed!
              YOU can make a difference - all you have to do is try!

              Dx age 12 current age 46 and counting!
              lost: 5 family members to HCM (SCD, Stroke, CHF)
              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
              Therapy - ICD (implanted 97, 01, 04 and 11, medication
              Currently not obstructed
              Complications - unnecessary pacemaker and stroke (unrelated to each other)

              Comment

              Today's Birthdays

              Collapse

              Working...
              X