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Lisa and All who work on the site!!!

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  • Lisa and All who work on the site!!!

    Good morning all! kollin just went back for his 2nd. appt with D. Cook. I wanted to let you guys know he speaks VERY highly of Lisa as well as this site. He hasn't met any of you but he has reveiwed the site and casually knows Dr. Marron? from the Mayo Clinic...not sure if the name is right but I think that is what he said. Anyway~ We are trying Aetenolol as his new med. switching him off the inderal he is 1/2 a 25 mg. tablet a day. to start and we can adjust accordingly. Told me to watch his pulse and make sure it didn't go below 60. So all in all this visit went MUCH better. And they were extremely apologetic about the unanswered questions and the confusion from before. He said as long as Kollin continues to do as well as he is and their are no complications/symptoms/side affects we need to address he can be a normal kid and go back again in 6 months. So there is my update. Wanted to let you guys know that You are heard and spoken highly of all over the country. Even in Montgomery, Al.
    Good friends are good for your health.
    --Irwin Sarason

  • #2
    thanks

    Thanks for the good news --about Kollin and knowing we are well though of.

    Keep us posted on your son (and you!).

    We just keep trying to do our best --and Lisa is a maniac (in a good way) about spreading the word.

    take care,

    s

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    • #3
      I'm glad Kollin is doing so well. Keep us posted on his progress.
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

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      • #4
        I am glad your son is doing well. I am also happy that your doctor sees the value of our efforts.
        Best wishes,
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

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