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Dad--more problems


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  • Dad--more problems

    It's been about a year since I last updated on my dad, who has HCM and was diagnosed with pulmonary hypertension secondary to sleep apnea last year.

    Things have gotten worse for him. He had a great summer, and a great fall, and Mom & Dad were planning on going on a cruise in December (Dad's dream trip, through the Panama Canal). Last Thanksgiving he went into the hospital and was diagnosed with necrotizing fasciitis (the "flesh-eating bacteria") in his right leg. It was touch and go for awhile, initially, and he had to be put on dialysis because his kidneys started to malfunction, probably due to the onslaught of antibiotics. He spent 72 days in the hospital, contracted c. difficile, also had some kind of an upper respiratory infection. He also had a. fib and they had to adjust his medications for his heart to control that. We had our family Christmas in his hospital room, which cheered him up so much he was discharged a week earlier than expected, and a week after that, he went off dialysis.

    Then his heart started acting up again. They didn't change his medications after he left the hospital, so he went into CHF. That got taken care of, but now he's back in the hospital again, because his kidneys are damaged and he will need to be on dialysis 3x/week, with a 25% chance he'll ever get off it.

    So, his litany of illnesses begins with HCM, and includes diabetes, pulmonary hypertension, sleep apnea, recovery from NF, and now kidney damage. "He's not a healthy guy," my mom says it.

    Father diagnosed @ age 35 with IHSS (HCM)
    Me: Exercise-induced asthma, also triggered by cold and illness, from high school (1981)
    Water retention problems since age 13 or so
    Tested for HCM at age 22, no sign
    Hypertension, 1999
    Type 2 Diabetes, 2000
    Echo, 2003, Diagnosis: PVCs
    Depression and anxiety, 1992
    Seasonal Affective Disorder, 2002
    Echo, 2011; LVH, valvular leaks, but no obstructive HCM (?!)

    Niece, age 12: Heart murmur detected in athletics physical, 2011: echo showed normal heart

    Drum Sergeant and Bass/Tenor drummer, Celtic Nations Pipes & Drums, Milwaukee--We're no' awa' tae bide awa'...

  • #2
    Re: Dad--more problems

    Heidi - Sorry to hear he's having a tough time. I'm thankful he has your support and in turn, you have ours.
    Diagnosed @ 48
    Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
    Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
    AICD - Valentines Day '08, Spark Plug replaced 11/14
    After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
    Quietly going insane . . .


    • #3
      Re: Dad--more problems

      I am so sorry your family is going through this. I have watched my mom suffer a lot and it is no fun to watch a parent suffer like that. Best of Luck!


      • #4
        Re: Dad--more problems

        I'm sorry to hear of the continued problems. I hope he's feeling much better soon.

        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.


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