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Dee Find out more about Dee
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  • Medic Alert

    I need to get a Medic Alert bracelet for Dylan, but I'm kind of stuck as far as what to put on it. Do any of you have them for yourself or your children, and if so, what does it say on it?

    I guess I'm wondering what's the easiest words to use to explain his defect and what to look for first with him...

    Thanx in advance as always

    Dee
    Dee, Mom to Dylan
    (Almost 7 yrs old, HOCM, Endocarditis/Stroke 1/01, Myectomy/Valve Repair 4/04)

  • #2
    "Hypertrophic cardiomyopathy with obstruction"
    "prior stroke"
    "medications:XXXXX"
    No nitro
    clear that with your doctor but that should be fine.
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment


    • #3
      This is on my husband's bracelet. Hope we help you.

      "Pacer
      Cardioverter
      Defibrillator
      Hypertrophic
      Cardiomyopathy
      No MRI"
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

      Comment


      • #4
        Medic Alert

        Dear Dee,

        Be sure you get an actual Medic Alert bracelet from medicalert.org. They keep your medical records as well as family and doctor contact info on file, plus anything that is "good to know" but not urgent enough for the bracelet. Medics will get this info when they call.

        They can also help you figure out what to put on it. I spent half an hour on the phone with a nurse one day for mine!!! They are very nice.

        Mine says "A-fib, cardiomyopathy, takes warfarin. Allerg morphine, compazine."

        take care,

        S

        Comment


        • #5
          Lisa, why "no Nitro"?
          Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
          So if you are capable of thought then you are capable of great things
          Good luck and stay well.
          Glen

          Comment


          • #6
            Nitro is contraindicated in HCM (refer to the PDR)
            It is a vasodilator and in most patients with HCM it can make symptoms worse and even cause death in some.
            THERE are a very very few people with very "small vessels" that may benefit from minimal therapy from such meds. but the overwhelming # will have a poor reaction to it.
            Lisa
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)

            Comment


            • #7
              Medic alert

              Both my children wear medic alert bracelets. They have for many years! These bracelets also help with school for school nurses.

              My daughter's says:

              Hypertrophic Cardiomyopathy
              Artificial Mitral Valve
              Takes Propronolol and Coumadin

              My son's says:Hypertrophic Cardiomyopathy
              Takes propronolol
              Allergic: sulpha, codiene, morphiene

              Hope this helps!
              Michelle - mom to Krista and Tyler both HCM
              Krista surgeries: 3/97 myectomy, 2/99 mitral valve replacement
              Tyler surgery: 1/98 myectomy

              Comment


              • #8
                Medic Alert

                My Medic Alert Tag say's:
                Pacemaker
                Hypertrophic
                Cardiomyopathy,
                Subacute Bacterial
                Endocarditis,
                Atrial Fib,
                Takes coumadin

                Yes they got it all on!
                My 1 year loves pulling on the chain and biting the medal, He is almost wearing off the writing.

                Chris

                Comment


                • #9
                  bracelets

                  Hi all,

                  I have made several different bracelets for my Medic Alert since the stainless steel doesn't quite "go" with a ball gown (or other fancy outfits).

                  I also have a small wrist and didn't like it flopping around.

                  I don't have "no nitro" on mine, but I don't have room for anything else unless I go up to a 90 character size --phooey.

                  later,
                  S

                  Comment


                  • #10
                    Medic Alert Bracelets

                    Jewelers carry charms with the medical alert symbol on the front. They engrave the information on the back. They come in silver and gold. Some have a red background. If you're out of room on your bracelet, consider adding a charm to it for additional information.
                    Obstructive HCM, Pacemaker 1999, Septal Myectomy 2002

                    Comment


                    • #11
                      ouch

                      My arm would stretch under the weight of all the extra charms I would need!!! OHMIGOSH!! SHRINKYDINKS!! I can write the info on a Shrinky Dink, shrink it, and use that as an extra charm! I'm so excited. I love Shrinky Dinks.

                      (I hear you laughing out there! But you would be amazed at what people are doing with shrink plastic these days.)

                      Thanks, everyone.

                      S

                      Comment


                      • #12
                        Re: ouch

                        Originally posted by Sarah
                        My arm would stretch under the weight of all the extra charms I would need!!! OHMIGOSH!! SHRINKYDINKS!! I can write the info on a Shrinky Dink, shrink it, and use that as an extra charm! I'm so excited. I love Shrinky Dinks.

                        (I hear you laughing out there! But you would be amazed at what people are doing with shrink plastic these days.)

                        Thanks, everyone.

                        S
                        Sarah,

                        You really made my day!!! You're right, Shrinkydinks rock!! I love those things. You know, you might be onto something here...... Hmmm.

                        R
                        Reenie

                        ****************
                        Husband has HCM.
                        3 kids - ages 23, 21, & 19. All presently clear of HCM.

                        Comment


                        • #13
                          I love Sarah's enthusiasm. Plus, I've seen some of her creations, they're great. Now we know what you'll be doing this wkend, Sarah. Linda

                          Comment


                          • #14
                            My daughter has her diagnosis, medication, allergies and her cardiologist's phone number.

                            Comment


                            • #15
                              Re: Medic Alert

                              What the heck is a "Shrinky dink"?
                              Tammy

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