We have an appointment for the 3 of us at the New England Medical Center for February 11th. It was originally scheduled for May 13th but Lisa took care of it. We're obviously anxious and realize that it's obviously something that needs to be done regardless of the outcome. Once again, thank you Lisa.
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Hi -
I am glad that we got that straightened out - I do think there was a misunderstanding at the appointment desk the first go around.
I am very happy that you will all be seen by a quality center and get yourselfs on the road to living with HCM.
All the Best,
LisaKnowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
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