My 15 year old son...

[Karen P]

Hi Diane,

My son hasn't been diagnosed as of yet. We haven't been told to stop sports by our physician. I wasn't sure if you thought that he was playing sports against medical advice.

I understand that it only takes a second, a heart beat, for something to happen. You mentioned being scared silly...for years i've had my heart in my throat as I've watched my children play sports. When and if we get the word, he will no longer play ball, but i'm hoping & praying that it won't be at this follow up and that he can enjoy a year in varsity ball...you can always hope...right?

It's great that you have your son plugged in with counseling and I agree with you about having someone their own age to talk to.

Take care

[Sarah]

Sadly, it is still happening

Please read the tragic post about the 26 year old who dropped while playing basketball --the obit doesn't say it, but since memorial funds are to go to an HCM clinic --I'm guessing that he had it and knew it.

Do we really think about our choices?

S

[Diane Tipton]

HCM and sports

We are fairly new to the HCM diagnosis, and maybe I should not be concerned about the above post becaue they have a great deal more experience with HSM than we do (plus we have Wolff Parkinson White and A-fib problems), BUT...
many students in our Houston area have died on the sports arena playing in an air conditioned gym. in the heat before school starts, etc. It has been in basketball, football, etc. I would be scared silly for my son to continue to play contact sports for even one game. We were told in no uncertain terms, never again. It only takes a second for a tragedy, no matter how badly they want to play.

[Lisa Salberg]

Karen -
GOOD LUCK!
Lisa

[Karen P]

thanks Sarah!

[Sarah]

soldiering on...

Please read the postings under the heading "Pepperdine Basketball Player Adjusting to Life with HCM" ---I think it will help a lot.

I can't relate very well. I miss dancing, but it was never my goal to be a star ballerina. However, you will find lots of support here and many others going through the same thing --or have gone through it.

There are several postings about the Pepperdine kid that the search engine can pull up for you.

take care,

S

[Karen P]

Bert,

I was wondering your son went for the second opinion yet. How is he?

My son was scheduled for his follow up this past Monday, but was cancelled due to snow. I'm anxious about this visit. He is a junior in HS and around the same age as my husband was when he was diagnosed. My daughter was 19 when she was diagnosed with HCM. In my heart, I feel he is following in his sisters footsteps, though I pray that he isn't. There is a look to his septum that made his dr suspicious, though his numbers were all within the normal range and his floppy mitral valve has truly prolapsed now...this was exactly how our daughters disease process went.

He's made the varsity baseball team & is looking forward to an incredible season. I hate to be the one to remind him of what the future MAY possibly hold - but somebody has to mention it. He thinks he is going to be a professional baseball player & will play with an ICD if he has to. And, believe it or not, my husband encourages him about the pro player thing!?! My husband swims in that river of denial!! lol.

His gift from Santa this year was a trip to Florida to a baseball camp with a friend, not solely because he was a good boy, but because I think his diagnosis is coming. I wanted that wonderful baseball memory for him just incase his season was cut short! We are blessed in a way because we know our family history and we can prepare somewhat. I don't mean to minimize our daughters diagnosis because it was hard, but we weren't blown out of the water as some families are. Anyway, our son's trip was tainted somewhat with reality when his sister had an ICD urgently implanted on Christmas eve. He left for Florida the day after Christmas with a heavy heart and a new found respect for HCM.

His follow up is now scheduled for March 7 - keep your fingers crossed & please say a prayer. I don't mean to be greedy, but I'd love to see him have that incredible year in varsity ball. Hopefully, HCM won't personally affect him...well, physically anyway since he already is affected by the disease as all family members are.

Take care Bert. Please keep us posted on your son. My prayers are with your family.

Karen

[Bert]

Good idea

As soon as we get a our second opinion next week, he may be in need for someone to talk to. We are planning on seeking counseling for all 3 of us for that matter as I too agree that it's a good idea. I'll let you know what the prognosis is. Thank you for posting.

[Diane Tipton]

reply to 15 year old son...

Our 16 year old son was diagnosed two years ago, just one year after he began to play football in school. He also was devistated, but we kept emphasizing how lucky we were to know about this condition BEFORE a tragedy happens. He is seeing a psychologist, even though he says he does not need it. I think it would help if teens had other teens who have the same condition to talk to. I know some of what he is going through, but I can't begin to feel what he feels. He is having great difficulty at this point staying in school all day because of excessive tiredness.

Maybe they could email each other?

[Glen Beamish]

Bert, I can relate, I had to give up all athletic activity 30 years ago and I also went thru an emotional withdrawal.
Over the years as they learned more about HCM I am able to do cycling and other moderate activities and live just a great life.
Maybe the second opinion will have better news, but if not, know it is not the end of the world, just another challenge the big guy has given your son and were all here to cheer you on.
Keep us posted.

[Bert]

Thanks everyone!

We'll be heading to Boston very soon. I'll keep you posted as to how we're progressing. So far Jonathan is doing well and is going about his business, with the exception of hockey of course. Time will tell...

[Robert Hartwell]

Bert,

We are all with you and your family. Please get the second opinion and let us know. Many times the challenge is within.

Bob

[Lisa Salberg]

We had a nice talk and Bert and his family are off to a good second opinion in Boston -
Hang in there guys...we are here for you!
Lisa

[Reenie]

I know this is tough for you and your whole family. I don't have any answers, but am pulling for all of you.

Reenie

[Lisa Salberg]

Bert - I will call you!
Lisa