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Dr. Towbin

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  • #1

    Dr. Towbin

    Lisa, thanks for your help with my son Brandon and the discussion about his defibulator. I'm a little anxious to speak with Dr. Towbin and just double checking that you received my fax and was able to send Brandon's records and Ben's autopsy to him. Have you heard from him? How long do you think it will take before I hear from him? Do I need to contact him myself? I understand he is very busy. I'm just very nervous about all of this. Thanks again.
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  • #2
    I will take a look aat everything in the morning - caught me on a REALLY busy week with the new website and all...
    I will email when I have read everything...
    I would call Dr. Towbin in the morning, ifhe has not read the records he/ his office should be able to give you a timeframe as to when they will get to it.
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #3
      Can you call me or email me Dr. Towbin's phone number? Thanks,

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      • #4
        Dr. Towbin

        Lisa, Dr. Rhee is contacting Dr. Towbin for me with a second opinion. I have talked to Dr. Towbin's nurse who has informed me that he will not give a second opinion to me, but will give one to Dr. Rhee. Thanks again for all your help.

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        • #5
          That is fine. If you want to see him for a second I am sure he would do that..but over the phone doctors like to talk to doctors.
          I hope to be returning calls soon...my voice is gone again
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment

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