If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Welcome

Collapse

About the Author

Collapse

Lisa Salberg Find out more about Lisa Salberg
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Welcome


    Welcome to the New message board!
    I know it is going to take a little while for everyone to learn there way around.
    I welcome all comments on the upgraded page so please tell us what you think!
    Lisa
    8)
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Lisa,

    First, the new site is great! Having lead a website creation team years ago and then led the conversion to a portal I know how tough a job it is.

    I mailed you a CD earlier this week that will have my son's (Lee) echo on it. I also email you a copy of his med records from Asan Med Ctr. We returned there today to see the Pulmonologist. Lee has some collection of liquid at the base of his lungs, and a slight case of asthema. He is consulting with the cardiologist as they together must determine if these conditions are a result of the HCM and Atenolol, or if it is independent of that. He has been prescribed steroids and a light bronchial dialator to ease his breathing. He understands that could be counter indicative of the Atenolol, so it is a very light prescription.

    Let me know when you receive the CD and if you need anything else. Also inclosed with the CD is a membership check.

    Keep up the great work.
    Brody
    ________________
    \"Some men see things as they are and say why? I dream things that never were and say why not?\"

    George Bernard Shaw

    Comment


    • #3
      I will keep my eyes open for the CD. It sounds to me like they are caring well for his current situation.
      Glad you like the site
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment

      Today's Birthdays

      Collapse

      Working...
      X