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Where can I get a donut magent?

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  • Where can I get a donut magent?

    Ok, I have these leads in me that may fail. I really don't like the idea of getting zapped multiple times until someone with a magnet gets to me (or I get to them).

    Anyone know where to order these from?

    I understand that the device might be giving appropiate shocks, but I want it around anyway.

    Dave

  • #2
    Re: Where can I get a donut magent?

    You need to talk to your doctor about this. I'm not aware of any place you can purchase one without doctor recommendation.
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #3
      Re: Where can I get a donut magent?

      You can speak to your EP and ask if it is appropriate for you to have one - most docs will get them for you.

      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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      • #4
        Re: Where can I get a donut magent?

        I also have the dreaded S/F wire and I am a nurse with years of ICU/cardiology experience and I would hesitate to use a magnet unless I was being monitored to be sure I was not going in and out of V-tach. I know it is scary to think about continuous shocks, but,first, I would go to the nearest ER - with my magnet in my hand. Yes, I have one.

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        • #5
          Re: Where can I get a donut magent?

          My EP office gave me one without me even asking.

          Leon
          God Squad co-moderator
          Nothing is as gentle as strength and nothing is as strong as gentleness

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          • #6
            Re: Where can I get a donut magent?

            Alright, I have no idea what a 'donut magnet' is but I am getting an ICD this month. I presume it is a device that can turn off an ICD if it goes inappropriately?

            Paul
            Age 38, dad of two young children, dx 1996, myectomy March 2005, a-fib issues, due for ICD soon.

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            • #7
              Re: Where can I get a donut magent?

              Yes, a donut magnet will disable the device while it's in close proximity. It's just shaped like a donut. When the magnet is removed the device will reboot and continue to work, but if it was malfunctioning, it may continue to malfunction then too. Getting to the doctor immediately is of utmost concern.
              Reenie

              ****************
              Husband has HCM.
              3 kids - ages 23, 21, & 19. All presently clear of HCM.

              Comment


              • #8
                Re: Where can I get a donut magent?

                Reenie, is there anything else which can turn an ICD off if it malfunctions. What if I am in Bali, days from Western medical care?

                Paul
                Age 38, dad of two young children, dx 1996, myectomy March 2005, a-fib issues, due for ICD soon.

                Comment


                • #9
                  Re: Where can I get a donut magent?

                  There isn't anything besides a strong magnet to disable it. You would need to get medical attention immediately to disable the device if necessary. Remote areas can cause problems, but it's rare you would have a problem.
                  Reenie

                  ****************
                  Husband has HCM.
                  3 kids - ages 23, 21, & 19. All presently clear of HCM.

                  Comment


                  • #10
                    Re: Where can I get a donut magent?

                    From what I have been told by the ICD techs, any magnet strong enough to cause the device to chime is strong enough to disable your ICD. My kids had these "rock" magnets that did the job. I personally use the magnet from old carelink device, or I should say, would use it if the occasion arises again. I have had lead failures and a device that was inappropriately programmed. That said, you better be reasonably sure your device isn't firing legitimately before you disable it. I've been on both sides of this complex issue, and it can be a tough call.
                    Best wishes to all, Blaine
                    Diagnosed with HOCM in 1995, age 36. First AICD same year.
                    2 myectomies at Cleveland Clinic, 2002, 2005 with Doctors Lever and Smedira.
                    Grandfather died suddenly in his forties. Nephew diagnosed with HCM.

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