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Rose & Becca


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donnaspatz Find out more about donnaspatz
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  • Rose & Becca

    Rose & I flew home from Boston yesterday afternoon and the ICD experience was so much better than I ever expected! Rose & Becca were both in pain and may not totally agree, but I had it in my mind that it was going to be much worse. Rose was excited because Lisa showed us around some of Boston the night before the surgery and we never had the chance to do that. Rose also loved the entire hospital experience, Drs., beds, nurses, pain meds, etc. Becca and Rose did pull each other through and have started a wonderful friendship that I am sure will last forever! Lisa and I are blessed with two wonderful kids! Pam Alexsson visited the girls and made them both feel very special! We also got to meet Tim and ask some in person questions about the message board which was great. Thank you all for all the prayers it really did help. Rose and I are looking forward to meeting a lot more of you in June. Thanks again! Donna

  • #2
    Re: Rose & Becca

    What a neat experience for something that is not always fun. Having new friends makes it easier. Good luck to Rose on the rest of her recovery.

    Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
    ICD&Pacemaker 1996
    Heart transplant March 19, 2004 @ Mayo Rochester
    Mom of Kaye.


    • #3
      Re: Rose & Becca

      Donna - Thanks for the update. I'm glad you all were able to be there for each other. Lisa is quite a tour guide, isn't she? Linda


      • #4
        Re: Rose & Becca

        I'm glad you had such a great experience. I hope Rose is back to new right away!


        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.


        • #5
          Re: Rose & Becca

          Today was a first...Becca slept until 11:00am the kid was knocked out by the past few days! It was really great that she and Rose had each other to go through this with each other. We had hoped that the girls could share a hospital room however they were placed in PICU as a precaution so they had private rooms - as adults we beg for private rooms as kids...well neither were happy with that.

          Becca is doing very well! Thank you all for your good wishes!!

          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)


          • #6
            Re: Rose & Becca

            Good news!
            Dx: HOCM 1991, Myectomy/Mitral Valve Repair @CCF July 19, 2005. Wife and Mom of two: ages 5 and 3.


            • #7
              Re: Rose & Becca

              Hey Rose- this is Dan, the guy you talked to a few weeks back. I'm glad the operation went well! (The same to you, Becca). You two can feel free to IM me whenever you have questions (or if you just wanna chat) at mandan207.

              Stay cool,


              • #8
                Re: Rose & Becca

                Glad to know the girls are both home and doing well. Sorry that they didn't get to share a room. Hopefully this will start a longtime friendship for the girls.

                Love and prayers!
                tommysgirl wishes you a blessed day with many laughs and smiles along the way!

                Wife of Tommy Hall passed 9/22/07
                HOCM, (AA x2, CABG, RFA, Myectomy x2, Maze)
                Tomy 13
                Amber 25
                grandchildren Aiden 6, Maddie 4


                • #9
                  Re: Rose & Becca

                  I'm very pleased to hear that both girls are doing well and now home

                  My very best wishes go with them for the future.