If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Run of V - Tach

Collapse

About the Author

Collapse

Pam Alexson single mother of 3 wonderful young adults;a special ed teacher, an RN and a senior accountant. Find out more about Pam Alexson
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Run of V - Tach

    Just got back from my Ep appointment to talk about the change out of devise. The doctor looked at me and said ,"well missy , you had a run of V-tach in Feb. You were lucky you spontaneously converted back to NSR before your devise needed to charge up . Let's just say it had gone on to needing your defibrilator. There is no way to tell at this point if it would have malfunctioned on the charge up sequence, which we believe is what happened to the shortcircuited devise that the young man who died had." She looked at me and said," that devise is coming out without question ASAP, I have always wondered about your heart and if we would see V-fib. Now we know."

    There is an angel watching over me.

    I am going in Tues . to have it done AND I asked to be switched to Medtronics.

    On my way to Boston now for more about the gastric issue.

    Pam
    Dx @ 47 with HOCM & HF:11/00
    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
    Lead failure,replaced 12/06.
    SF lead recall:07,extracted leads and new device 2012
    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
    Genetic mutation 4/09, mother(d), brother, son, gene+
    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

  • #2
    Wow Pam! I am glad you are still here to tell the story. Let us know what kind of Medtronic device you get and how you like it.

    Peace,

    Leon
    God Squad co-moderator
    Nothing is as gentle as strength and nothing is as strong as gentleness

    Comment


    • #3
      A second wow!!!!

      It is great they are doing this sooo soon, and glad you converted to NSR

      Shirley
      Diagnosed 2003
      Myectomy 2-23-2004
      Husband: Ken
      Son: John diagnosed 2004
      Daughter: Janet (free of HCM)

      Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

      Comment


      • #4
        Geez! I'm glad to hear you didn't need that darned device!

        Reenie
        Reenie

        ****************
        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.

        Comment


        • #5
          See,
          This is what I'm worried about. When I was in the hospital in May I was in the bathroom of all places. When a flock of nurses came running in to check on me. They told me I had a run of V-Tach. So, when I got out and went to my local guy. They did an interrogation. It recorded nothing! So, the Dr. Said that all of the nurses were wrong! I reminded them of this right after it was released they blew me off.

          One of the reasons I got this device was because I had V-tach on a holter. I also have a family history, syncope, and adverse response to exercise. That's four of six.

          I know I should call the guys up in Boston again. But, I've had to call Dr. Maron four times already this week. Thanks to my docs down here!

          Oh, well

          mary

          Comment

          Working...
          X