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glasseagle Find out more about glasseagle
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  • Hello ICD Friends

    Just a short note to say Thanks to all of you who had written to me in regards to my recent ICD experience...I will definitely like to email quite a few of you soon...but I have a family crisis at the moment. We had found out that our son (14 years old) has a tumor in his liver...it has spread to his left lung and glands. I ask that you keep us in your prayers...His name is Kevin Dana. I cannot believe that we have gone through this HOCM - ICD and now this...very tough. Anyways....just asking for some prayers. I will write in a couple days or so. Thanks for your responses and thoughts.


    Douglas Dana
    Disabled Native American Veteran
    United States Air Force

  • #2
    Kevin will definitely be in my prayers! I'm sorry that you have so much to deal with right now. Let us know when you're ready and we're here for you.


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #3

      I can't imagine what you are going through. I hope all of the tumors are benign and it is fixable. I will be praying for you!

      Mary S.


      • #4

        Your entire family is in my prayers and i hope all goes well

        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


        • #5
          Douglas, Kevin and your entire family will be in my prayers. Please keep us updated. Linda


          • #6

            I am so sorry to hear about your son. Please know that we will keep you in prayer.


            God Squad co-moderator
            Nothing is as gentle as strength and nothing is as strong as gentleness


            • #7
              So very sorry to here about your son. You and your family are in our prayers.

              Karen Cicconetti
              Heart Transplant 1998
              Don\'t take your organs to heaven
              Heaven knows we need them here


              • #8
                Douglas ,

                I am sorry for you and your families troubles. I will keep your son in my prayers. May you find the strength you all need.

                Dx @ 47 with HOCM & HF:11/00
                Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                Lead failure,replaced 12/06.
                SF lead recall:07,extracted leads and new device 2012
                [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                Genetic mutation 4/09, mother(d), brother, son, gene+
                Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


                • #9
                  Hi Douglas

                  I'm sorry to hear about your son. Sometimes it seems as though so many things happen at once. I know from experience, when you need strengh to help someone in need (especially a child), it is given to you.

                  I certainly will keep you son and your family in my prayers.

                  Please keep us updated.


                  • #10
                    Our thoughts and prayers are with you!

                    Best wishes,
                    Knowledge is power ... Stay informed!
                    YOU can make a difference - all you have to do is try!

                    Dx age 12 current age 46 and counting!
                    lost: 5 family members to HCM (SCD, Stroke, CHF)
                    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                    Therapy - ICD (implanted 97, 01, 04 and 11, medication
                    Currently not obstructed
                    Complications - unnecessary pacemaker and stroke (unrelated to each other)


                    • #11
                      Praying here!



                      • #12

                        I will be thinking and praying for your family. Take care

                        41 years old. Diagnosed with HOCM in Feb 2005. Myectomy at Mayo on June 8, 2005