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Should Patients Be Advised?

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Lisa Salberg Find out more about Lisa Salberg
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  • Pam Alexson
    replied
    Yes , This was a concern as you know that I voiced. My Ep now, was a fellow at the time that I first met her. She was the one who moved and when I began to see her at her new location she was no longer a fellow. She had to have registered the changes with Guidant because her new location made excellent contact with me. I recieved a letter , a registered letter and 4 phone calls from different individuals there. Since I never moved, I wonder why Guidant themselves never made any attempt to reach me. A reporter for the Boston Globe wanted to know if I had ever recieved a notice from a car recall . Big yes 3 times on a car that I bought used... They had no problem sending me a postcard.

    Pam

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  • Lisa Salberg
    replied
    food for thought

    In some cases patients move from one area and find a new doctor. In these cases medical records may be delayed in the process. If there is a recall or advisory during this time a patient may not get timely notification if the notice is only sent to the doctor. This has happened in the past and should be part of the thought process developing new channels of communication regarding recalls.

    Leave a comment:


  • vmcmahon
    replied
    notification

    I vote that the doctor should be the one advised. These companies should also be under legal requirement to make a public disclosure within days of discovering a problem.

    Leave a comment:


  • Tim Stewart
    replied
    Originally posted by Reenie
    I voted that the doctors need to be advised of problems. I feel if the patient is notified directly there might be some room for undue panic. The doctor can notify the patient and help them select a good treatment plan for the individual. However, that said, I'm not against notifying the patient IF the doctor is notified as well.

    Reenie
    I agree with Reenie ... The doctor who order the ICD should be in communication with the manufacturer and decide what is best for the patient.

    Leave a comment:


  • shirleymahoney
    replied
    Pam

    That is very true I too called my doctor and got things rolling, but no the patient has the right to know along with the doctor

    Shirley

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  • Pam Alexson
    replied
    I believe the patient should be notified. The doctor also , but the patient has the devise , a doctor could be away and the letter could get filed or put in the pile. It was my call to my EP that got things going in the first place . She had not recieved a letter and had only heard what others had read in the paper as had I . We both got going on it. She sent messages to me that I should continue to check check on things and let her know and we would talk as soon as she had fully reviewed the material. She likes how I get to investigating things and that I am very proactive in my health management. Too bad not all doctors feel the same.

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  • Toogoofy317
    replied
    Well, I think both should be advised about the situation if it is one that could cause life=thretening complications. Frankly, I'm at the point of not having full trust in my doctors in making the right decision. Many of you know my issues. I will let it rest at that. But, I knew about this whole guidant thing before my cardio knew. That was a little unnerving to say the least. I also read the letter that my doctors recieved and it was nothing like the NY Times report! I'm 100% dependent on this device for pacing as well.

    My local cardio says I have absolutly nothing to worry about. But, I've got a call in to Dr. Martin Maron to see his opinion on the whole deal. I just hope I don't have to go back up to Boston. I don't have the money to fly!

    By the way the poll was not working for me!

    Mary S.

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  • Reenie
    replied
    I voted that the doctors need to be advised of problems. I feel if the patient is notified directly there might be some room for undue panic. The doctor can notify the patient and help them select a good treatment plan for the individual. However, that said, I'm not against notifying the patient IF the doctor is notified as well.

    Reenie

    Leave a comment:


  • Lisa Salberg
    started a poll Should Patients Be Advised?

    Should Patients Be Advised?

    150
    Yes, I the patient should be advised
    35.33%
    53
    No, the Patients Doctor should be advised
    0.67%
    1
    Both patient and doctor should be advised
    64.00%
    96
    I would like to poll our membership. Please feel free to reply even if you do not currently have an implantable device.

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