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Owner of One of the flawed AICDS

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Pam Alexson single mother of 3 wonderful young adults;a special ed teacher, an RN and a senior accountant. Find out more about Pam Alexson
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  • #16
    Overall the positives far out weigh any negative potentials. Two of my first cousins who were younger died ; they did not know they were at risk of SCD or that they had cardiomyopathy. For me it is a no brainer it is just too bad that a manufacturer took it upon themselves to not value 24,000 lives over the value of stock and potentially poor publicity.
    Dx @ 47 with HOCM & HF:11/00
    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
    Lead failure,replaced 12/06.
    SF lead recall:07,extracted leads and new device 2012
    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
    Genetic mutation 4/09, mother(d), brother, son, gene+
    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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    • #17
      ventak Prism 2 "issues"

      I have confirmed that I am an owner of the potentially flawed device. quite honestly I have been fine with my diagnosis and treatment for 5 years..until now. I am a total mental case trying to decide if I should change out the ICD. Ironically I had my annual at CCF last Wednesday and discussed the situation with Dr. Lever and Dr. Wilkoff. Dr. Wilkoff was very thorough, but statistic oriented in his explanation of the problems that have occurred with the Guidant device. My husband sides with his mathematics..Lever was staying out of it, because he could tell I was about to become emotional(smart guy!) and the decision is ultimately left up to me. It will have to be done eventually RIGHT? UGH!
      I called Guidant and they will give my physician a FREE Guidant device and me up to $2,500 out of pocket expenses(ie. deductibles). The medical expenses will have to be covered by insurance~ I still have to check into that aspect. Do any of us really need this added stress and interruption in our lives? Best of health to all of you!

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      • #18
        Well guys

        I have not got one of the right serial numbers thank goodness, i was told right model wrong serial number, i was told i had one of the revised ones i hope, but it does make you wonder when they didn't bother to tell anyone about the flaw for sooooo long and it took someone going public, you know it is a shame well i guess it wasn't their life or one of their loved ones huh

        Shirley
        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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        • #19
          Gee, I hope there is no $ involved in my change out because they are getting nothing from me. Even if they tried . I have medicare/ BC& BS and usually it is all covered if the doctor deems it necessary , and she does. Keeping my fingers crossed.

          Pam
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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