Just an update,
My Ep called me 2 times this am , she is rather perturbed with the manufacturer of my devise( 1861 , implanted in 2000) as I would expect her to be. She said BIG definite, she is making plans to change out my devise. She felt it was very presumptuious for a manufacturer of a devise to feel or state from their standpoint that individuals who have devises due to their high risk for SCD are not at risk of SCD with a devise known to be flawed and have already led to malfunctioning. Helloooo someone died already with the malfunctioning devise, does it have to be more then one poor unfortunate individual???. Until the switch live a quiet life ( as usual ) and be around those who know me and about me. So that is the plan , hopefully to occur before the end of the month.
I am sure others will be hearing of a plan that is in their best interest as well.
Pam
My Ep called me 2 times this am , she is rather perturbed with the manufacturer of my devise( 1861 , implanted in 2000) as I would expect her to be. She said BIG definite, she is making plans to change out my devise. She felt it was very presumptuious for a manufacturer of a devise to feel or state from their standpoint that individuals who have devises due to their high risk for SCD are not at risk of SCD with a devise known to be flawed and have already led to malfunctioning. Helloooo someone died already with the malfunctioning devise, does it have to be more then one poor unfortunate individual???. Until the switch live a quiet life ( as usual ) and be around those who know me and about me. So that is the plan , hopefully to occur before the end of the month.
I am sure others will be hearing of a plan that is in their best interest as well.
Pam
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