If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Bi-ventricular Pacer/Defib for me

Collapse

About the Author

Collapse

Zook94 Find out more about Zook94
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Reenie
    replied
    I hope it just needs to be set to different parameters. If not, I'm glad you have it!

    Reenie

    Leave a comment:


  • Zook94
    replied
    Well, made it through that part of it. Boy am I sore from where they extracted my old hardware. Got some lovely new scars, and bruising to deal with for a short bit. Oddly enough, the new device fired this A.M., not sure why as of yet, but it will be figured out soon.

    Leave a comment:


  • Eileen2345
    replied
    Zook,

    I am so sorry to hear you are in end-stage HCM.

    It is good to know that your local EP has a 100% success rate for removal of old leads.

    I hope all goes very well with the new device.

    I visit another heart message board, and most of the people there have Dilated Cardiomyopathy with Bi-ventricular pacers/defibs and they love them, they say that they work well for them. They have more energy after they recieve those devices.

    I will hold positive thoughts and pray for you.

    Lots of Hugs,

    Eve

    Leave a comment:


  • Linda
    replied
    Zook, Best wishes for the upcoming procedure. Please keep us posted. Linda

    Leave a comment:


  • shirleymahoney
    replied
    Zook

    Sounds like you have alot going on right now please hang in there and know we are thinking of you, please keep in touch on how you are doing

    Shirley

    Leave a comment:


  • Zook94
    started a topic Bi-ventricular Pacer/Defib for me

    Bi-ventricular Pacer/Defib for me

    Well, it seems as thought I have not responded to the meds that were chosen to improve my EF, and will get a new device. The date chosen is 4-25-05.

    I spoke with Dr. Lever, and he agreed that I could have the device implanted at my local hospital, and they even have the laser required to remove my old pacer and leads. Local EP, Dr. Yunis, will have the honor. He has a 100% success rate for removal of old leads to date, and comes highly regarded......


    Still have not come to terms with "End stage", but the reality is that my EF is 20-24%, 9 years post Myectomy. I was non-cooperative with Coreg, and Altace is not helping as they would have liked.

    I was lucky enough, (or unlucky?) to have to be hospitalized for over a week for complications from back surgery. There was a small accident while in the NICU, and I had to move to a CCU unit, and was monitored for the hospitals safety. They got to capture about a weeks worth of "normal" heart rhythms for me, which included mild AF and small runs of VT (seemed small to me), 8 beats consecutive. They wouldn't release me until an EP made a full diagnosis. I explained to him that I had seen Dr. Martin, along with Dr. Lever at CCF, and understood exactly where I stood.


    I don't post too often, but lurk here daily. I'll let you all know when the deed is done.....

Today's Birthdays

Collapse

Working...
X