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Bi-ventricular Pacer/Defib for me

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Zook94 Find out more about Zook94
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  • Bi-ventricular Pacer/Defib for me

    Well, it seems as thought I have not responded to the meds that were chosen to improve my EF, and will get a new device. The date chosen is 4-25-05.

    I spoke with Dr. Lever, and he agreed that I could have the device implanted at my local hospital, and they even have the laser required to remove my old pacer and leads. Local EP, Dr. Yunis, will have the honor. He has a 100% success rate for removal of old leads to date, and comes highly regarded......


    Still have not come to terms with "End stage", but the reality is that my EF is 20-24%, 9 years post Myectomy. I was non-cooperative with Coreg, and Altace is not helping as they would have liked.

    I was lucky enough, (or unlucky?) to have to be hospitalized for over a week for complications from back surgery. There was a small accident while in the NICU, and I had to move to a CCU unit, and was monitored for the hospitals safety. They got to capture about a weeks worth of "normal" heart rhythms for me, which included mild AF and small runs of VT (seemed small to me), 8 beats consecutive. They wouldn't release me until an EP made a full diagnosis. I explained to him that I had seen Dr. Martin, along with Dr. Lever at CCF, and understood exactly where I stood.


    I don't post too often, but lurk here daily. I'll let you all know when the deed is done.....

  • #2
    Zook

    Sounds like you have alot going on right now please hang in there and know we are thinking of you, please keep in touch on how you are doing

    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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    • #3
      Zook, Best wishes for the upcoming procedure. Please keep us posted. Linda

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      • #4
        Zook,

        I am so sorry to hear you are in end-stage HCM.

        It is good to know that your local EP has a 100% success rate for removal of old leads.

        I hope all goes very well with the new device.

        I visit another heart message board, and most of the people there have Dilated Cardiomyopathy with Bi-ventricular pacers/defibs and they love them, they say that they work well for them. They have more energy after they recieve those devices.

        I will hold positive thoughts and pray for you.

        Lots of Hugs,

        Eve
        49 yrs. old
        Diagnosed at 31.
        Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
        First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
        Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
        Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
        My brother passed away suddenly at 34 yrs old from HCM.
        2 teenage children, ages 17 and 15.

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        • #5
          Well, made it through that part of it. Boy am I sore from where they extracted my old hardware. Got some lovely new scars, and bruising to deal with for a short bit. Oddly enough, the new device fired this A.M., not sure why as of yet, but it will be figured out soon.

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          • #6
            I hope it just needs to be set to different parameters. If not, I'm glad you have it!

            Reenie
            Reenie

            ****************
            Husband has HCM.
            3 kids - ages 23, 21, & 19. All presently clear of HCM.

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