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heather Find out more about heather
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  • Replacement date scheduled

    I am set up for replacement of my AICD on the 21st of this month. That's the 1st day of our Spring Break, so I'll have a week off from school to recover. I saw the EP dr. who will do the replacement and he had a lot of questions as to why Mayo had some of the setting the way they did and he said my atrial lead was in a bad spot w/ made it pace twice as much as it needed to, which is partly why my battery ran down so quickly. he said that where the lead is placed it makes it pace the atrium and the ventricle. I don't know if all of that is 100% correct, just my take on it all, but he said at this time it's safer to just replace the AICD instead of my leads and we'll do that as long as we can. So, I may be looking at replacement every 2-3 yrs. for awhile. He also wasn't sure why I was paced 100% because he turned the pacing off and I had a normal sinus rythym at 66 bpm. So, I gave him the #'s of the drs. I saw at Mayo and he was going to call and get all of the facts before he made any changes.

    Heather- 32-HCM
    Heather, 43, non-obstructive HCM, dx'd at age 14, AICD implanted 11-02, PVAI ablation done for a-fib and a-flutter 5-2010. 2nd PVAI done for a-flutter and a-tach 3-2014. 3rd PVAI for a-flutter June 2015, dr forgot to reset ICD settings and I went into vt and almost died, July 2015, July 2015-started tx work up, October 2015, put on list in Dallas and tx'd on November 14, 2015.

  • #2
    Heather, Best wishes - I'm glad your docs are able to work closely together for you. Linda

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    • #3
      Heather - I had mine replaced last Friday, and I was back at work on Monday. There was really nothing to it. It only hurt for like the first 12 hours after the surgery. I only took Tylenol for pain and refused the stronger meds.

      Good luck.

      Cynthia
      Daughter of Father with HCM
      Diagnosed with HCM 1999.
      Full term pregnancy - Son born 11/01
      ICD implanted 2/03; generator replaced 2/2005 and 2/2012
      Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

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      • #4
        My thoughts are with you Heather. My Dad had his replaced about 6 months ago. He beeped when the battery was dying! lol I kid you not!

        God Bless! Hugs, Terry

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        • #5
          Hey Cynthia,

          That’s great to hear. I’ve been thinking about you and was hoping that you were doing well.

          While we are at it, how is your dad doing? I am hoping to get good news on that score also.

          Burt

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          • #6
            (with all due apologies for hijacking Heather's thread....)

            Hey Burt,

            Thanks for asking...my dad is doing as well as can be expected. There was some thought that they would have to replace the entire hip and not just the ball joint, but when the got in there they were able to replace just the joint. The operation was shorter than my ICD replacement...45 minutes. He is up and walking with the help of the PT folks and may be transferred to the rehab unit of the hospital soon.
            Daughter of Father with HCM
            Diagnosed with HCM 1999.
            Full term pregnancy - Son born 11/01
            ICD implanted 2/03; generator replaced 2/2005 and 2/2012
            Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

            Comment


            • #7
              Freaking hijacker's

              LOL
              "Some days you're the dog... some days you're the hydrant."

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