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ICD Implant

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baw578 Find out more about baw578
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  • Laoshur
    replied
    Re: ICD Implant

    Fluid buildup in your lungs does not sound "fine" to me! Is your doctor an HCM specialist? Maybe you should talk with Lisa when she gets back from vacation.

    Rhoda

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  • baw578
    replied
    Re: ICD Implant

    The doc looked over everything. I'm fine. I was having some water build-up in my lungs which was causing shortness of breath. He upped my dossage to 100mg in the morning and 50mg at night of Atenolol. I feel great now. The best i have in years.

    I hope to attend the annual metting this year. We'll see.

    Leave a comment:


  • Linda
    replied
    baw578 - I hope things improve for you quickly. Please keep us posted - Best wishes - Linda

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  • Pam Alexson
    replied
    Baw578,

    I am sorry to hear that you are having recent problems. Yes it is very important to investigate an increase in symptoms and fluid around the lungs needs to be monitored and treated . Their findings of "acid reflux " is not an uncommon response as many have heard from non specialty docs. Do you see a specialist next week?

    Unfortunately , CHF often does come to some with HCM . However, CHF is very treatable and can be well managed, keeping individuals out of the acute episodes.

    I do the same with my electrophysiologist except , I use the phone hub 2 times a year and see the EP 2 times a year , at this point. One time a year , I go under anesthesia to have my AICD tested. This new technology makes it nice to be able to avoid office visits so frequently don't you think?

    Wishing you well,

    Pam

    Leave a comment:


  • baw578
    replied
    I have alot to update since last Sept. I got one of those devices where they call you and you hook up to this machine to your results. I do that every six months and doc visit every six months.

    I don't know if this is supposed to be posted here, but I'm putting it here so you don't have to look for my previous posts about me. I have been having some chest pains the past couple of days. I figure it's mainly stress related. But I had a big chest pain in front of some co-workers yesturday and they told me to call my doc. Doc said go to ER. Turns out I have liquid around my lungs. Right now they are treating me for acid reflux to see if that caused the pain. They also think I might have the early stages of Congestive Heart Failure (CHF). So I've had my diffibulator for a year (01/14/2005) and now I'm 24. I have to rest up for a couple days and see the doc next week. Only time will tell. Thanks

    Leave a comment:


  • baw578
    replied
    The appointment with my Electrophisiologyst went fine. The had to update my software and "tweak" my settings. My natural pace is at 99%. Maybe the tweaking will make my natural pace to 100%. I haven't seen my Chardiologist in over a year. I meet with him on Oct 3. I thought that the Electrophisiologyst took over. I guess not. Just an update. Nothing special.

    Leave a comment:


  • Reenie
    replied
    My suggestion would be for you to ask your doctor what your target bpm should be. Congrats on the weight/inches lost! I'm working on that myself and it's hard work. I applaud you!

    Reenie

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  • baw578
    replied
    Ok, It's been a while since I got on. I've been working out since April. The doc told me my choloestoral was 220 so I decided to change my eating and excercising habits. I've lost about 16+ pounds and 2-3 inches. Walking up stairs and walking in general is so much easier. The only thing I'm needing help with is know what is a safe bpm for excercising. I'm taking a cycling class and I don't want to hurt myself. I will be going for a checkup on Sept 22. It should go well. Thanks. Sorry I missed the metting in June.

    Leave a comment:


  • Pam Alexson
    replied
    I am glad to hear that all has gone well for you and that you have the peace of mind that a necessary devise can give you.

    Keep in touch.

    Pam

    Leave a comment:


  • baw578
    replied
    It's been a while since I posted last. I went for my 6 week check up two weeks ago. The doctor was happy with how the surgery went and how well I healed up. I did have one episode or event recorded. The device did not interveign though. It just monitored when my heart got above 164bpm. They upped it to 167 as the monitoring point. I actually knew what I was doing at the time it happend b/c they gave me a date and time. I was carrying a tripod up some stairs kinda fast. I don't remember to much discomfort. But like I said, they were regular beats. At least I know it's doing something. I found that I have no obscruction. Yeah! Now all I have to do is do regular device check ups every quarter and doc visits every 6 months. He said eventually I'd phone in my device check up (my interpretaion, not his words).

    Leave a comment:


  • cheerchicken05
    replied
    go you! when i got mine they also gave me a dummy one, everyone said whoooa thats heavy how's it feel. i told them if they duct taped it to thier shirt, thats how it felt. i dont feel it anymore though. They just had me take tylenol though, over the counter dosages too. meh, whatever. glad to know you're feeling better!

    Leave a comment:


  • Reenie
    replied
    I'm glad it all went so smoothly! My husband also got a show and tell piece. It's fun to see the looks people give you when you show them his "Zippo Lighter" and explain that it's in his chest.

    Reenie

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  • Lisa Salberg
    replied
    Thank you for updating us on your procedure. You sound like you did very well in your recovery!

    Best wishes to your entire family and stay well!
    Lisa

    Leave a comment:


  • baw578
    replied
    All went well during my surgery. The ICD worked when they tested it. It has been two in a half weeks. It was so nice to be able to drive. I didn't realize how much of a privilage it is. I definatly recovered alot faster than my brother. I put in 32 hours last week and I'm putting in 32 hours this week. I didn't do any work my first week. St Jude was nice enough to give me two ICDs. One is in me and the other is a show-and-tell peice. It is deffinatly more comforting to know other people are going through the same thing. So noone out there is alone. The third day was the last day I took pain pills. I hate the way Lortab makes me feel. How do people get hooked on somthing like that. I didn't really notice any difference excpet trouble sleeping when it wore off. Thanks for all you're cares.

    Leave a comment:


  • cheerchicken05
    replied
    Hey-- I'm 17, also with a 28mm wall and i had an ICD implanted June 6th (when i was 16). i have no sudden death in my family, and nobody in my family has been diagnosed with HCM (although they are keeping an eye on my younger brother) I don't really have any other high risk factors, but the doctors really wanted me to have an ICD, partially because i am so young and active still. It's not bad, it gets annoying but doesnt get in the way or anything, even though i really am active still. its fun to freak people out with, anyway. HAH!

    Leave a comment:

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