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ICD Implant


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baw578 Find out more about baw578
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  • #16
    My suggestion would be for you to ask your doctor what your target bpm should be. Congrats on the weight/inches lost! I'm working on that myself and it's hard work. I applaud you!


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #17
      The appointment with my Electrophisiologyst went fine. The had to update my software and "tweak" my settings. My natural pace is at 99%. Maybe the tweaking will make my natural pace to 100%. I haven't seen my Chardiologist in over a year. I meet with him on Oct 3. I thought that the Electrophisiologyst took over. I guess not. Just an update. Nothing special.


      • #18
        I have alot to update since last Sept. I got one of those devices where they call you and you hook up to this machine to your results. I do that every six months and doc visit every six months.

        I don't know if this is supposed to be posted here, but I'm putting it here so you don't have to look for my previous posts about me. I have been having some chest pains the past couple of days. I figure it's mainly stress related. But I had a big chest pain in front of some co-workers yesturday and they told me to call my doc. Doc said go to ER. Turns out I have liquid around my lungs. Right now they are treating me for acid reflux to see if that caused the pain. They also think I might have the early stages of Congestive Heart Failure (CHF). So I've had my diffibulator for a year (01/14/2005) and now I'm 24. I have to rest up for a couple days and see the doc next week. Only time will tell. Thanks


        • #19

          I am sorry to hear that you are having recent problems. Yes it is very important to investigate an increase in symptoms and fluid around the lungs needs to be monitored and treated . Their findings of "acid reflux " is not an uncommon response as many have heard from non specialty docs. Do you see a specialist next week?

          Unfortunately , CHF often does come to some with HCM . However, CHF is very treatable and can be well managed, keeping individuals out of the acute episodes.

          I do the same with my electrophysiologist except , I use the phone hub 2 times a year and see the EP 2 times a year , at this point. One time a year , I go under anesthesia to have my AICD tested. This new technology makes it nice to be able to avoid office visits so frequently don't you think?

          Wishing you well,

          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


          • #20
            baw578 - I hope things improve for you quickly. Please keep us posted - Best wishes - Linda


            • #21
              Re: ICD Implant

              The doc looked over everything. I'm fine. I was having some water build-up in my lungs which was causing shortness of breath. He upped my dossage to 100mg in the morning and 50mg at night of Atenolol. I feel great now. The best i have in years.

              I hope to attend the annual metting this year. We'll see.


              • #22
                Re: ICD Implant

                Fluid buildup in your lungs does not sound "fine" to me! Is your doctor an HCM specialist? Maybe you should talk with Lisa when she gets back from vacation.