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ICD/Pacemaker Combo?

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  • #16
    Re: ICD/Pacemaker Combo?

    Julie, just so you know, my hocm specialist, Dr. Pravin Shah, does not recommend the EP studies. Maybe since you had the first one installed 6 years ago that was what they did then. If I get one (which I think is a real possiblity) I am not going to allow that! Did you have to get the ep study on the one you just got? What/where is ccf?

    Comment


    • #17
      Re: ICD/Pacemaker Combo?

      Reenie, did your husband have general anesthesia when he got his icd?


      Originally posted by Reenie
      When my husband got his ICD they didn't do the EP study at all, therefore no incision in the groin. They just made the incision in the upper left chest near the collar bone, inserted the lead through a vein, and made a pocket to put the device into. When they brought him out it was about 1 pm or so. He went home from the hospital the same day, although I think that's somewhat unusual. He didn't take anything more than tylenol or motrin for the pain.

      Reenie

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      • #18
        Re: ICD/Pacemaker Combo?

        Kathy,

        I had an icd/pacer put in Mar 98 under similar circumstances. My 24 hr holter caused the ep to put me in the hospital because of the v-tach. They did an ep on mon but I surprised them first by going into v-fib as soon as they got me on the table. Took multiple shocks to restore a rythum. 7 years later the ep crew still remembers me as Mr Excitement.
        They are pacing DDD pacing me and it has reduced my mitral regurg which is good but I am still bothered but a lot of chest pain, SOB light headedness after squatting, but hte graying out/ pre syncope has disappeared. I am not satisfied overall because I can not do what I want, ie walk 100 yards so I am probably going to go to Mayo for a consult. DDD pacing overalll has not been succesfull to alleviate symptoms but pacing in general has solved my v-tach problems.
        Art
        PS: I decided not to mention my son here as his icd had to be replaced because of endocarditis, a rare complication of any implant. He is doing ok now.

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        • #19
          Re: ICD/Pacemaker Combo?

          Originally posted by kathyn2
          Reenie, did your husband have general anesthesia when he got his icd?


          Originally posted by Reenie
          When my husband got his ICD they didn't do the EP study at all, therefore no incision in the groin. They just made the incision in the upper left chest near the collar bone, inserted the lead through a vein, and made a pocket to put the device into. When they brought him out it was about 1 pm or so. He went home from the hospital the same day, although I think that's somewhat unusual. He didn't take anything more than tylenol or motrin for the pain.

          Reenie
          Yes, they put him clear under for the implantation.

          Reenie
          Reenie

          ****************
          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.

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          • #20
            Re: ICD/Pacemaker Combo?

            Yeah the doctors released me from the hospital like 4 hours after my replacement, and didn't give me nothing more than the tylenol or motrin, I feel pretty crappy though, I think they could of giving me something a lil stronger than tylenol or motrin at least for the first couple days, I'm sensitive to pain I guess.
            Jen

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            • #21
              Re: ICD/Pacemaker Combo?

              Jen, I hope you feel better soon. You are making me dread this if I decide to get one. ugh

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              • #22
                Re: ICD/Pacemaker Combo?

                Kathyn,

                Don't worry. For most of us the pain is a little unpleasant, but nothing severe. I took some Tylenol the first day or two and then nothing. Riding in a car was unpleasant for the first couple of days. But four days after the implant I rode in a car from Richmond VA to Louisville KY without any severe problems. I would not recommend it, but it was possible and not very unpleasant.

                Rhoda

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                • #23
                  Re: ICD/Pacemaker Combo?

                  Please don't take me wrong the implant is well worth it, just a lil sore.
                  Jen

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                  • #24
                    Re: ICD/Pacemaker Combo?

                    After the implant, how long does it take for the pain to go away? Are there medications that help?

                    Thanks,

                    Nigel
                    I cannot fear death, because when dead, death does not exist. Love is the reason for being, it can never be taken away nor lost, so hold on I will, and in death I will not part, but rejoice for the time I’ve had with you.

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                    • #25
                      Re: ICD/Pacemaker Combo?

                      I guess just the tylenol and just being careful not to bump it or move around too much the first few days, i think it helps to sleep with a body pilllow to keep from rolling over on it. alot of time.
                      Jen

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                      • #26
                        Re: ICD/Pacemaker Combo?

                        Hi guys,On 11/4/04 I had a new medtronic maximo dr put in , only needed tylenol for pain and it was only sore enough for tylenol for 3 days .I also am paced 100% which has lowered my gradient rather well ,but it has also weakend my heart ,ejection fraction is less than 50% now , but no syncope and no shocks for allmost 2yrs. Rich
                        Allways remember you cannot control the wind!!
                        However you can adjust your sails!!

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                        • #27
                          Re: ICD/Pacemaker Combo?

                          Rich, are you concerned about the heart weakening? Do you need to be paced 100% of the time? I have a doctor that wants to put in an icd/pacemaker and pace me to relieve obstruction but I am afraid of the heart weakening. So far I can't find any literature on it How do you know this has happened to your heart and is it worth it?

                          One more question is what causes the syncope that seems to be prevalent with this disease?

                          Comment


                          • #28
                            Re: ICD/Pacemaker Combo?

                            Kathy

                            I was paced for over a year and i think the only thing i got from it was an AV Block and it didn't reduce the obstruction any so, i think they are finding that pacing isn't working like they hoped, but i would not give up my defibulator for anyone it is my best friend and it will be yours too, i don't even know mine is there most of the time unless i hit it or something and even then it isn't too bad

                            Have a great weekend

                            Shirley
                            Diagnosed 2003
                            Myectomy 2-23-2004
                            Husband: Ken
                            Son: John diagnosed 2004
                            Daughter: Janet (free of HCM)

                            Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                            Comment


                            • #29
                              Re: ICD/Pacemaker Combo?

                              well I had a cath done and my cardio told me this about it getting weak.is it worth it ,well so far so good.I have a lot more muscle than i need so i dont want it to be real strong I guess .I feel good and can do more, just have to keep a slow pace and take lots of breaks.Rich
                              Allways remember you cannot control the wind!!
                              However you can adjust your sails!!

                              Comment


                              • #30
                                Re: ICD/Pacemaker Combo?

                                I also wanted to add my heart failure has gotten worse my BNP was 686 a couple of months ago well you take care and keep in touch

                                Shirley
                                Diagnosed 2003
                                Myectomy 2-23-2004
                                Husband: Ken
                                Son: John diagnosed 2004
                                Daughter: Janet (free of HCM)

                                Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                                Comment

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