Hi Again,
I have been hanging around this site now for about 2 years and have gone through the gammit from diagnosis, drug therapy and ultimately myectomy. I am now in what the doctors call burnout phase ( a nasty description if I may say so). My heart is now responding well to ACE inhibitors in conjuction with Verapamil in controlling my blood pressure, however, I am back to being out of breath pretty much at any level of activity. Even with this happening I do feel pretty good most of the time now.
The question I now have is of people who have been through the burnout phase of this disease or are considered to be in it. I understand an ejection fraction at 40 or lower is often caused by the heart simply wearing out from years of hard work and rigid muscle due to the growth patterns of the muscle fibers. The question is how did or how are your doctors handling it? What can be expected? What can be done to prolong the life of my heart.
Thanks!
Doug
I have been hanging around this site now for about 2 years and have gone through the gammit from diagnosis, drug therapy and ultimately myectomy. I am now in what the doctors call burnout phase ( a nasty description if I may say so). My heart is now responding well to ACE inhibitors in conjuction with Verapamil in controlling my blood pressure, however, I am back to being out of breath pretty much at any level of activity. Even with this happening I do feel pretty good most of the time now.
The question I now have is of people who have been through the burnout phase of this disease or are considered to be in it. I understand an ejection fraction at 40 or lower is often caused by the heart simply wearing out from years of hard work and rigid muscle due to the growth patterns of the muscle fibers. The question is how did or how are your doctors handling it? What can be expected? What can be done to prolong the life of my heart.
Thanks!
Doug
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