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Want to talk to ICD HCMer's in their 30's


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  • Want to talk to ICD HCMer's in their 30's

    Hello HCM'ers,

    I love the 4HCM Message Board. I've had HCM since age 7.

    I'm currently 36, and my new Cardiologist in Pittsburgh is advising an ICD

    It's funny I used to design electronics for NASA spacecrafts, and some of the people I worked with had also designed pacemakers,etc . Never thought I'd be wearing one.

    Are there any 30 something's ICD people out there that would willing to talk to me (voice to voice) and tell me what you experiences have been?


  • #2
    Re: Want to talk to ICD HCMer's in their 30's

    Hello, Edwin,

    I'm 35 and I've had an ICD for two years now. I got it after I had a cardiac arrest which is when I found out about HCM.

    I'm not sure what the correct etiquette is for exchanging phone numbers but you can contact me at my email ([email protected]) and we can 'coordinate' that way...

    - Danny


    • #3
      Re: Want to talk to ICD HCMer's in their 30's

      Hi Edwin. My husband is 39, diagnosed at age 35. He's had an ICD for a little over 4 years now with no shocks. Let me know if you have any questions. I'd have to ask him if he'd be willing to talk to you.


      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.


      • #4
        Re: Want to talk to ICD HCMer's in their 30's

        Call the office anytime to chat! I am 36 and on my 4th implantable device!

        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)


        • #5
          Re: Want to talk to ICD HCMer's in their 30's

          Hey Edwin,

          I'm 31 and I've had mine for 15 months now. Send me an IM if you would like and I will send you my phone number.

          Take care,


          • #6
            Re: Want to talk to ICD HCMer's in their 30's

            I am 36 and received my icd in march of this year....You can im me if you like.



            • #7
              Re: Want to talk to ICD HCMer's in their 30's

              hi i am 39 now had my icd for almost 2 years my e-mail is [email protected] e-mail me your # and i would be willing to talk
              good heath to all