If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

ICD replacement recovery

Collapse

About the Author

Collapse

Darek Find out more about Darek
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • ICD replacement recovery

    Howdy all. Last Friday I had my second ICD replaced with a new top-o-the-line one from Medtronic. The surgery went well and I was released the next day. However, today is Tuesday and I don't think my recovery is going as well as expected. I feel fine while lying down and sitting but I can only walk a very short distance before I feel my heart racing a bit (upwards of 110 bpm's) and I get a little out of breath. I was wondering if anyone else has taken this long to fully recover. My last ICD surgery was 3.5 years ago and I don't think it took this long. Of course, there is some swelling in my chest so that might have something to do with it too. They also put a lead into my right atrium so the ticker might be a little agitated by all that work too. I was hoping someone could provide me some reassurance that this is normal.

  • #2
    Re: ICD replacement recovery

    Darek,

    Hi, I think a call to your doc is in order. Could be nothing , but why second guess it? I don't believe that others have mentioned similar.

    Lisa has just had a replacement and she did well.
    These are devises and malfunctions can occur.

    Please let us know what the outcome is.
    Good luck.

    Pam
    Dx @ 47 with HOCM & HF:11/00
    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
    Lead failure,replaced 12/06.
    SF lead recall:07,extracted leads and new device 2012
    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
    Genetic mutation 4/09, mother(d), brother, son, gene+
    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

    Comment


    • #3
      Re: ICD replacement recovery

      I too felt a little sluggish after surgery - it may have something to do with the anesthesia. It has taken me about 5 days to feel like myself - yet I am still a bit tired.

      If you have any concerns please call your doctors and let them know what is going on.

      Take care,
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment


      • #4
        Re: ICD replacement recovery

        Doctor said it would take a few days and I do remember last time it took quite a few days so maybe I'm rushing it like I always do. Sometimes I forget the trauma the human body goes through with surgery especially with a touchy heart like mine. It doesn't like it when it's messed with

        Comment


        • #5
          Re: ICD replacement recovery

          DITTO on that!
          My ticker gets out right ticked off when I have any 'insult' to the system.

          Give yourself some time!
          (this coming from the one who was out of the hosptial in 3 hours post implant! )

          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment


          • #6
            Re: ICD replacement recovery

            3 hours??? You're just asking for it then haha. That's crazy. Heck I couldn't even move until the next day. I suppose you drove home too haha.

            Comment


            • #7
              Re: ICD replacement recovery

              Darek, if I read your post correctly, you had a new lead put in - that's more than just a replacement ICD. You had more done than Lisa - you can't compare the two. If you are having episodes of your heart racing, call your doctor, esp if it's out of character for you. Good luck, keep us posted. Linda

              Comment


              • #8
                Re: ICD replacement recovery

                Yes I agree with Linda - a generator replacement is easier then adding a lead. Also did you check to see if the settings have changed?

                RE the leaving within 3 hours - I was prepared to spend the night as I normally do not wake up very well after having anything done. When I sat up and said- -you know I feel fine - then my husband walked in and laughed and said- you look normal - your not pale - your not tired then gave me look like"whats wrong?" I was laughing and said - lets get out of here! and we did!

                Take care - and keep laughing - it really is the best medicine!!

                Lisa
                Knowledge is power ... Stay informed!
                YOU can make a difference - all you have to do is try!

                Dx age 12 current age 46 and counting!
                lost: 5 family members to HCM (SCD, Stroke, CHF)
                Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                Therapy - ICD (implanted 97, 01, 04 and 11, medication
                Currently not obstructed
                Complications - unnecessary pacemaker and stroke (unrelated to each other)

                Comment

                Working...
                X