If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

not pleased with pacing.

Collapse

About the Author

Collapse

Art Geddes Find out more about Art Geddes
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • not pleased with pacing.

    OK gang,
    how many have ddd pacing and are you really satisfied with your lifestyle?
    I have been paced using an ICD (Guidant) for +61/2 years now. On echo's my mitral regurg has been reduced from a 2+ to a trace, which is good. I am on verapimil 240/day/ toprol 50mg/day, and allegra. My gradient at rest is about 15 and provokes to about 65. I continue to be symptomatic with chest pain both at exertion and rest , exercise tolerance is terrible. I train dogs for my hobby(Labs) and have trouble walking 150 yards and hills are brutal. Last week a 72 year old retiree made me stop and was going to pick me up in his truck, he carried my load and I'm only 50. My ep doesn't think a myectomy would benifit me much because my gradients are just not that high. I had a thalium study which showed damage to the heart muscle a year ago, but a cath showed no CAD. My fear is that if I do insist on a myectomy and quit the ddd pacing I won't feel any better, but this is miseable and I don't know if I am just complaining. Nights are problems now also. Any comments. Lisa and I have talked some in the past.

    Also, jsut to let people know, muy son continues to do ok. Stayed active through the summer, no zaps, no more lhospital visits. Praise the Lord.
    Thanks,
    Art Geddes

  • #2
    Re: not pleased with pacing.

    Dear Art,
    So glad to hear your son is doing well.
    Now about you. It is probably a good time for you to give Lisa another call and talk your situation over. I have never had DDD pacing. I have only had some manipulation of the sequencing and AV interval. It did not work so after my myectomy it was terminated as it was no longer necessary to try to lessen the obstruction. I think if you have not seen a specialist it is time and as that seems to be the best advise of the day, I am sticking to it. I believe if anyone has to travel to see a specialist, it is the best trip you could ever take . Only a specialist can truly tell you what would be the best for your heart.
    Good luck and thanks for letting us know how everything is going.
    Pam
    Dx @ 47 with HOCM & HF:11/00
    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
    Lead failure,replaced 12/06.
    SF lead recall:07,extracted leads and new device 2012
    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
    Genetic mutation 4/09, mother(d), brother, son, gene+
    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

    Comment


    • #3
      Re: not pleased with pacing.

      Art, I've been thinking about your son, thank you for the update. I'm so glad to hear his summer went well. Yes, call Lisa and chat again. Please update us again. Linda

      Comment

      Today's Birthdays

      Collapse

      There are no members with birthdays today.

      Working...
      X