If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

finally got a defibrillator

Collapse

About the Author

Collapse

Virginia Find out more about Virginia
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • finally got a defibrillator

    Hi All,
    I am new here. I just had a defibrillator implanted on July 1 and am not doing to well. I have a blood clot slowing down the recovery. My fault.

    It took me over two years to get and I now can go to sleep not having to wonder if I will wake up.

    My brother had I.H.S.S. and died from sudden death in 1989. I was dx with I.H.S.S. in 2000 at age 48. (whoops gave my age away) and went into denial.

    Confirmed by the experts this year. So I had a reality check and finally got the defibrillator.

    I live with many other medical conditions that can't be fixed. At least now I no longer have to worry about the ticker not ticking without notice. I just cannot believe I was so foolish for so long and tormenting myself.

    Having the implant was an immediate stress reliever when you live with I.H.S.S., for anyone hesitating of getting one, don't hesitate just get it!

    My doctor took the control from me, and made me sign the consent form. I was blessed when he did that he took away all my fears and anxieties and gave me a sudden calm about having this done. I owe my doctor for that one.

    Thanks for listening to me.
    Virginia

  • #2
    Re: finally got a defibrillator

    Welcome to the club. I am 49 and have HCM. No deif but I had a myectomy in May of this year. Please keep us posted on your condition and ask any questions you might have...

    Tigger1
    " Real Courage Is Being Scared To Death But Saddling-Up Anyway "

    Comment

    Today's Birthdays

    Collapse

    There are no members with birthdays today.

    Working...
    X