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Recieved my ICD placement Monday!


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phatmatt Find out more about phatmatt
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  • Recieved my ICD placement Monday!

    I got my ICD put in Monday and I am very happy with how everything is going so far.
    Last edited by phatmatt; 03-22-2017, 03:54 PM.

  • #2
    Re: Recieved my ICD placement Monday!

    Dear Matt

    Welcome! Please check out the section called The Hang Out where you will find another 19 year old who just posted about his ICD placement experience.

    take care,



    • #3
      Re: Recieved my ICD placement Monday!


      welcome to the battery operated club

      You really have had a wonderful outlook on this and I am very impressed with you! You are 'adult' enough to admit that some of your past activities my have been - well - not the best things you could have done - but even more impressive is you know what you need to change in order to have the best quality of life YOU can have. I have spoke to many people 2-3 times your age who have not figured this out yet!

      Start moving the arm and shoulder today a bit more - within a week you should be back to nearly normal.

      Best wishes!

      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)


      • #4
        Re: Recieved my ICD placement Monday!

        Matt--congratulations on your ICD. I think you will find that it continues to be a piece of cake! I have had mine for over two years (funny, I can't even remember now exactly when it was put in) and it has fired only once--quite appropriately. Until that time, I wasn't sure I really needed one but it did serve to eliminate my somewhat theoretical concern about sudden death. Since it fired, I have been nothing but thankful for it---and for my life!

        I think I know what made it fire: probably much less strenuous partying than you had been doing but topped off with lots of dark chocolate. I now monitor my coffee, chocolate and alcohol consumption to be sure I'm not getting overloaded. I don't want my ICD to fire again. The worst part was not being allowed to drive for six months because I passed out before it fired; you might be spared that if your attack was really heart related and you didn't pass out.

        You will read that some people have lots of trouble with their ICDs. I think the majority of them are not HCM patients but people who have had multiple heart attacks. A few may be people who are getting very poor medical care. I predict a long and happy association for you and your ICD.