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All wired up With my biventricular pacer Here I am world!!

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  • All wired up With my biventricular pacer Here I am world!!

    Hey everyone Can't decide on an expression I want I guess it's in between a to keep going and going like the little engine that could and a little smile Ok that sounds about right.
    Sorry I should reintroduce myself It's me again Kimberly. So I went into the Brigham and got my biventricular pacer on July 15th. The morning after they checked my pacer and said one of the wires had come loose and yikes there I went into surgery that afternoon on the 16th at 3pm. So I had surgery twice. They checked my wires the next morning and everything was all clear and secure so I was happy. Now I just can't drive for a month or use the arm so it's in a sling. I have been having a lot of migraines lately so I am dealing with that issue and going to see if this pacer works and if not hopefully yet scaredly transplant list here I come. I want to find out how do I become a member of this hcma group. You guys are a wonderful group of people and thanks for all your prayers and love that you have given to me and the same to you in return. God bless you all.
    Kimberly K. Plaster

  • #2
    Re: All wired up With my biventricular pacer Here I am world

    Hi Kimberly
    I don't know what a biventricular pacer is? I had a duel chamber pacer. I have a ICD. Did you have any other device before the biventricular pacer? Please take it easy and rest. You went through double surgery and I know how tired I was after I had my second myectorm and the implant of my ICD within a few days.
    Hopefully you will be feeling better soon. Please keep us informed.
    May God Bless you and comfort you through your recovery.
    Esther

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    • #3
      Re: All wired up With my biventricular pacer Here I am world

      http://www.4hcm.org/members/index.php

      Use this link for membership information.

      I hope you are feeling better very soon. I have had 3 implanted devices thus far - the 4th is coming soon - so I really know what you are feeling - the good news is - - it fades fast!

      Take care!
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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