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DDD pacing

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Toogoofy317 non-obstructed hcm, AICD 11-01-02 and 10-6-05 Find out more about Toogoofy317
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  • Reenie
    replied
    Re: DDD pacing

    Mary, I'm pulling for ya!

    Reenie

    Leave a comment:


  • Laoshur
    replied
    Re: DDD pacing

    Mary,
    My, and I am sure many others, will have a very specific prayer for you that come Monday you will be fit for duty!
    Rhoda

    Leave a comment:


  • Lisa Salberg
    replied
    Re: DDD pacing

    Mary,
    If you are not fit for duty, yes the employer may be able to terminate your employment. There are some laws that offer limited protection, but I do not know that in FL you have the same laws that NJ and NY have.

    In short we need to get you up and running again.

    take care,
    Lisa

    Leave a comment:


  • Toogoofy317
    replied
    Re: DDD pacing

    Well,

    I talked to Dr. Maron about the DDD pacing and he is in agreement. The hospital did fax him all of the details. We are going to hold off on any cardiac meds due to the hypotension.

    I've just got to get something figured out. Work is getting worried that it may be to hard on me. In fact I have to go in on Monday and get another fit for duty physical. I'm so worried about that. I don't know what I would do if the doctor did not find me fit to do the job. Does this mean I'll get fired and lose all of my benefits?

    I just wish I knew what to do. If I lose this job well, don't even want to think about the consequences.

    Mary

    Leave a comment:


  • Lisa Salberg
    replied
    Re: DDD pacing

    There are many reasons to pace that are reasonable. There are long term issues with DDD pacing if you are not REALLY in need of it.

    The data that came out of the NIH re DDD pacing is so flawed it really should be withdrawn from the lituratre. I was part of the study as was my sister, I know how the study was really done and how many people have lost their lives - enough said.

    There are other centers who had published on the matter - look at there data.

    Lisa

    Leave a comment:


  • Cynaburst
    replied
    Re: DDD pacing

    Mary - Are you sure you are being DDD paced and not some other type of pacing? I would clarify that, but even if you are being DDD paced, maybe its what you need.

    I know that I am demand paced whenever my HR falls below 60, in part to keep my blood pressure up. I take a high dose of beta blockers now, but before my ICD I couldn't even tolerate a baby dose without my blood pressure tanking. The pacing has definitely helped my blood pressure stay up. My blood pressure had been known to drop to 50/30 before.

    There are also meds that can help. I used to take ibuprofen (advil) to raise my BP, and now I take one aspirin daily. There is also florinef that they give to people sometimes.

    Leave a comment:


  • Toogoofy317
    started a topic DDD pacing

    DDD pacing

    Typically DDD pacing is for obstructions right? I've also heard that it is maybe not a good option for HCMers too. I know the NIH studies were considered flawed because of unethical practices but I do no know to what degree.

    Anyhow, when I was in the hospital with my vast array of ailments the most outstanding was the continuous passing out episodes. My blood pressure was very unstable dropping to 70/30 at times. So I saw a new cardiologist who is also an EP. My old cardiologist gave up on me and fired me as a patient (funny, I thought I paid him). He told me all of this was in my head.

    As an effort to keep my BP on the semi stable side he put me on 100% pacing, compression stockings, and salt tablets to keep my blood pressure above 90. Is this the right thing to be doing at this point. I had the information faxed to Dr. maron but have heard nothing as of yet. Guess I will give him a call.

    Mary S.

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