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New implant of an ICD


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Lisa Salberg Find out more about Lisa Salberg
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  • New implant of an ICD

    You may recall some postings over the past few months from a member in Israel - I received this Private message yesterday and with her permission I am sharing it with you all!

    WE DID IT - Matan has his AICD!!!
    And we are back in the Hotel
    It was done one day before planned
    It was a surprise - Bery BIGGGG
    Every thing went very well
    I sent your regards to Dr. Berul
    He was very understanding
    All the treatment was very good
    All his team was there for us
    THANK YOU!!!


    On a side note - Last year on Christmas Eve - I had asked Daniela to do me a favor. She was on her way to the "Wailing Wall" in Jerusalem - it is custom to place a written prayer in the wall as a way of praying to G-d. As you can imagine you were all in my prayers - but I did ask for special blessings for this dear person I did not know who was so willing to give me an amazing gift for Christmas.

    I hope that little Matan has a quick recovery! I am glad to know this little one is now protected by his ICD (as we know not every child needs an ICD, but when it is called for it can be tricky to be implanted in these little guys)

    Best wishes to Matan!
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Re: New implant of an ICD

    Best wishes to Matan and his wonderful family!


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #3
      Re: New implant of an ICD

      Shalom Alechum,
      Peace be unto you and your family. May Matan be inscribed in the book of life for a long, happy life. Amen.


      • #4
        Re: New implant of an ICD

        Thank you for the update. I know his family must be relieved to have this behind them. Best wishes to all, Linda


        • #5
          Re: New implant of an ICD

          Thank you ALL!
          For being here - helping us to make the decision and helping us finding the right place for us to perform the implantation.
          There is only one doctor in Israel able to perform AICd implantation in children and did it only one time in Matan's age group
          (and only 5 in adolescents)
          And because Matan is so little (only 20 Kg. q 6 years old) It was very important to find a center with experience with little children.
          All the posts to this forum were a blessing for me and a BIG source of information and comfort.
          From my heart,
          Wishes for healh, peace and love!

          Daniela E-H, Mother to Matan-Ben (13 years old) who had his AICD implantation (29/03/04) and Myectomy (14/12/08) and Noga (4 years old) not affected
          Haifa - Israel.


          • #6
            Re: New implant of an ICD

            Mazel Tov on your Son's successful Implantation! Have a Happy & Healthy Pesach!


            • #7
              Re: New implant of an ICD

              Thank you!!!
              My husband (who has HCM) has family in Toronto (Canada) and in a brother in Seattle and they are all coming to our hotel to have a specila Dinner for Passover.

              Shalom !!
              Wishes for healh, peace and love!

              Daniela E-H, Mother to Matan-Ben (13 years old) who had his AICD implantation (29/03/04) and Myectomy (14/12/08) and Noga (4 years old) not affected
              Haifa - Israel.