If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

How Long?


About the Author


mtlieb Find out more about mtlieb
  • Filter
  • Time
  • Show
Clear All
new posts

  • How Long?

    I've heard varying answers to this...

    If someone with HCM suffers an arrhythmia and becomes unconscious, how long do you have before defibrillation must take place?

    "Some days you're the dog... some days you're the hydrant."

  • #2
    Re: How Long?

    It must be very fast!!!!
    Because usually it is the kind of arrythmias that may cause sudden death.
    We were told by our doctor that usually you may faint before the defibrilator will start and it will work each time for 10 sec. in children.
    For our son it is programmed to shock for 6 - 7 times. - Hoping it will do the work from the first shock....
    Hopes it helps,
    Wishes for healh, peace and love!

    Daniela E-H, Mother to Matan-Ben (13 years old) who had his AICD implantation (29/03/04) and Myectomy (14/12/08) and Noga (4 years old) not affected
    Haifa - Israel.


    • #3
      Re: How Long?

      Each minute that goes by reduces the chance for successful defib by about 10%.
      Implantables fire within the first few seconds.

      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)


      • #4
        Re: How Long?

        Jim, looks like you already got your answer, but I wanted to apologize for not seeing the question until this morning.


        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.


        • #5
          Re: How Long?

          No worries Reenie. I had forgotten about it myself until Danielaeh surprised me and posted to it yesterday. When my dad suffered his arrhythmia the paramedics couldn't get to him right away, but i've always suspected that it wouldn't have made much difference. An ICD might have saved him, but they didn't know he had HCM at the time.
          "Some days you're the dog... some days you're the hydrant."


          Today's Birthdays