If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

What does it feel like?


About the Author


Amber Mom of two, wife of one, living with HCM since 1999 Find out more about Amber
  • Filter
  • Time
  • Show
Clear All
new posts

  • What does it feel like?

    I have never had my defib fire off and I was just curious if it was as bad as everyone says it is? Everyone being docs and such who don't have ICDs. Can you tell that it's getting ready to fire off? Please tell me what to expect.
    Always and forever, all I do is for you MOM!
    Vicky Keller

  • #2
    Re: What does it feel like?

    My ICD fired three months after I got it installed. I was playing soccer for the 1st time after the surgery and my heart rate stayed above 150 bpm for more than a minute. It was not painful, because I did not expect it at all. It was like I was kicked very hard in the chest but directly after it I was okay again. I could not tell it was getting ready to shock. Some devices make a beeping noise when they charge but on mine that is turned off. Since my first shock I have been very anxious about it shocking me again out of the blue like the first time. I have a hard time dealing with that emotionally at the moment.




    • #3
      Re: What does it feel like?

      I have had my ICD for almost 4 years now and it has fired 7 times. I would say that the first 3 times that it fired I had no idea that it was going to fire. It does hurt but it's really not bad but I guess I have become used to it. I now can tell when its going to fire, my heart rate shoots up real quick and I get real short of breath then it fires. Right after it fires you feel almost back to normal, your heart gets back into a normal rate. I think the fact it has fired is the hardest part to deal with. At first I had a very hard time dealing with it but, I realized that it saved my life. I know it's hard but try not to worry about when it's going to fire, just follow your drs' orders and enjoy life the best you can. If you have any questions please don't hesitate to ask. you can email me or whatever way you want to contact me.

      Gary Valentino


      Today's Birthdays