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Dr. Recommends ICD

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  • Reenie
    replied
    Re: Dr. Recommends ICD

    Glad to hear all went well. You'll get used to it pretty quick, but watch out for the tops of car doors. Until you are used to making lots of room, you might whack yourself a time or two. And DON'T ask how I know.

    Reenie

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  • Lisa Salberg
    replied
    Re: Dr. Recommends ICD

    Sounds like a good experience!
    Yeh - it is odd getting use to the device in there - but you get use to it faster than you think.
    Lisa

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  • swinand
    replied
    Re: Dr. Recommends ICD

    Just wanted to let everyone know my ICD implant went fine. A little sore in the chest and shoulder with some bruising but it feels better each day. What a strange sensation to feel something hard under the skin, you can trace the outline with your fingers. The Dr. who performed the implant was very nice, we sat for some time and chatted about HCM, surgical specialists for HCM and the importance of second opinions. He took time to answer ALL my questions on the device and the procedure that would be done. I was surprised to learn they actually screw the leads into the heart muscle wall. Learn something everyday. I have a dual chamber unit for both the atruim and ventricle with a pacer function if the heartrate gets too slow. A very nice gentleman. I also had a heart cath done to confirm my chest pains and pressure was due to HCM and not some other cause. Everything came back fine there. Those babies are wide open. Next stop... Cleveland.

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  • Linda
    replied
    Re: Dr. Recommends ICD

    Steve. Best wishes, we'll be waiting for progress reports. Linda

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  • Reenie
    replied
    Re: Dr. Recommends ICD

    Steve, I'm sure you'll feel fine to travel. The only thing I'll suggest is that you be the passenger and let someone else drive. The seatbelt will make the ICD site tender. Especially if you're driving more than a few minutes. Good luck, and here's hoping that there are no other issues that they find when they do the cath.

    Reenie

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  • swinand
    replied
    Re: Dr. Recommends ICD

    I just wanted to give you a followup. I am scheduled for my ICD implant on Wed. 1/21. (This week) At the same time they will also do a cath to make sure none of the chest pains I experience are related to any other cause. I'm getting a two fer. I'll let you all know how it went. Next Tuesday 1/27 I leave for Cleaveland and my appointment with Dr. Lever on the 28th. They tell me there is no problem traveling in that timeframe or undergoing testing within a week. I hope not, stay tuned, Steve.

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  • swinand
    replied
    Re: Dr. Recommends ICD

    Thanks for all your thoughts and insights. I will keep you posted on progress and let you know when things get scheduled. Best to all, Steve.

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  • Lisa Salberg
    replied
    Re: Dr. Recommends ICD

    Looks like you are on the right road... best of luck on your "travels".
    Let us know how you make out. Oh send my regards to Cleveland.

    Lisa

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  • Largehearted
    replied
    Re: Dr. Recommends ICD

    Go get em Steve!
    I am one year out from my implant and don't really know it's there. You really do get used to it. My septal wall is at 3cm, but my gradient is reletively low for now. So far my pacing function is almost non-existent. There is a sense of security I have now that I didn't have before. You will do fine and I wish you the best!

    Peace.

    Leon

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  • Linda
    replied
    Re: Dr. Recommends ICD

    Steve, Best wishes, we'll be watching for progress reports. Linda

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  • Reenie
    replied
    Re: Dr. Recommends ICD

    Well, Steve, sounds like you need that little box in your chest. My husband's hypertrophy is midseptal too. His is thicker than yours though. Sure looks funny on an echo! Anyway, I'll be thinking about you and your upcoming ICD placement. You'll do fine.

    Reenie

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  • shirleymahoney
    replied
    Re: Dr. Recommends ICD

    Steve

    Good luck with dr. lever he will fix you up, and as far as the ICD goes I have one and i was only sore for about a week to 10 days, it's kinda cool the dr. brought the one in before surgery and showed it to me and let me hold it it's no bigger than a beeper, you just have to watch putting your arms over your head for about 6 weeks so the leads don't pull out, that was very hard for me so i put my arm in a sling, i'm really glad i got mine, my gradient is 50mmhg and iam obstructed and a strong family history of sudden death but anyway good luck and hope you are feeling better soon

    Shirley

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  • swinand
    replied
    Re: Dr. Recommends ICD

    A follow up to my original post here. As promised, my cardio consulted with several others in the practice I go to, as well as an electrophysiologist on my situation. He also personally reviewed the tape of my latest echo. Bottom line is he called me an unusual case, one they are not used to seeing. My septal enlargement is more to the center of my septum than closer to the top. I know the septum can get enlarged anywhere, bottom, middle or top, so this isn't a total surprise intellectually. My measurement is about 2 cm, not as large as I thought and not interfering with the mitral valve. They also reviewed my strips from the event monitor I wore for a month. The finding is I am having atrial fibrulation with signs of possible ventricular fibrulation and near syncope. As a result of that little diddy, I will be scheduled for a dual lead pacing ICD soon, before I go to Cleveland. He strongly recommends I go to Cleveland as scheduled and let Dr. Lever evalulate what if anything needs to be done related to any obstruction. My gradient is59 mm/hg. He also said I have posterial wall enlargement, and atrial enlargement. It looks like the rest of January will be interesting.
    Steve

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  • Lisa Salberg
    replied
    Re: Dr. Recommends ICD

    Steve,

    The ICD and myectomy are really 2 different items you must look at.

    If you have 2 risk factors for SD, according to all the available literature it appears an ICD is appropriate.
    If you have a gradient of 50mm+ and your symptoms are not improved with medication then myectomy is the "gold Standard" treatment for obstuction.

    As you have an appointment with Dr. Lever in 3 weeks, I would call the office and ask about the ICD question. They may do a few things - move up your appointment or tell you to go ahead with the ICD now, or tell you to wait until your seen in 3 weeks. These are VERY nice people who will help you....please call them.


    Best wishes,
    Lisa

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  • Reenie
    replied
    Re: Dr. Recommends ICD

    He has had the ICD since August 2000. It hasn't ever fired or even recorded anything unusual. We're pretty lucky. And yes, I think I probably have the prize for longest trip to the hospital for an ICD. LOL

    Reenie

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